STATE OF NEW YORK
________________________________________________________________________
5397--A
2019-2020 Regular Sessions
IN SENATE
April 29, 2019
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Introduced by Sens. HOYLMAN, CARLUCCI, RIVERA, SALAZAR -- read twice and
ordered printed, and when printed to be committed to the Committee on
Health -- recommitted to the Committee on Health in accordance with
Senate Rule 6, sec. 8 -- committee discharged, bill amended, ordered
reprinted as amended and recommitted to said committee
AN ACT to amend the public health law, in relation to information
provided to patients regarding sudden unexpected death in epilepsy
The People of the State of New York, represented in Senate and Assem-bly, do enact as follows:
1 Section 1. Subdivision 2 of section 2995 of the public health law is
2 amended by adding two new paragraphs (f) and (g) to read as follows:
3 (f) "Health care practitioner" shall mean a physician, nurse practi-
4 tioner, or physician assistant licensed or certified pursuant to title
5 eight of the education law.
6 (g) "Sudden unexpected death in epilepsy" shall mean sudden, unex-
7 pected death in patients with epilepsy, with or without evidence of a
8 seizure.
9 § 2. The public health law is amended by adding a new section 2997-f-1
10 to read as follows:
11 § 2997-f-1. Provision of information relating to sudden unexpected
12 death in epilepsy. 1. Any health care practitioner who is treating a
13 patient for epilepsy, who has primary responsibility for the treatment
14 and care of the patient, shall provide such patient with the following
15 written information:
16 (a) current and evidence-based information about sudden unexpected
17 death in epilepsy risk factors and conditions that has been reviewed by
18 one or more accredited medical experts and national epilepsy organiza-
19 tions; and
20 (b) contact information for nonprofit organizations that provide
21 information and support services for epilepsy conditions.
EXPLANATION--Matter in italics (underscored) is new; matter in brackets
[] is old law to be omitted.
LBD11201-05-0
S. 5397--A 2
1 2.(a) The commissioner shall provide written information to health
2 care practitioners necessary to implement subdivision one of this
3 section, and shall post such information on the department's website.
4 (b) The commissioner shall ensure that such information is culturally
5 and linguistically appropriate for all recipients.
6 (c) Any local or national organization that provides education or
7 services related to epilepsy conditions may request that the commission-
8 er include such organization's informational material and contact infor-
9 mation on the department's website. Once such a request is made, the
10 commissioner may add the information to the department's website at his
11 or her discretion.
12 § 3. This act shall take effect on the ninetieth day after it shall
13 have become a law.
