A03072 Summary:

COSPNSRBrindisi, Titone, Thiele, McDonald
Amd §207, Pub Health L
Creates an education and outreach program for the autoimmune disease known as lupus; provides for an advisory council consisting of representatives of people with lupus and their families and health care providers who specialize in treating lupus.
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A03072 Actions:

01/22/2015referred to health
05/19/2015reported referred to ways and means
01/06/2016referred to health
01/21/2016reported referred to ways and means
06/08/2016amend and recommit to ways and means
06/08/2016print number 3072a
06/14/2016reported referred to rules
06/14/2016rules report cal.330
06/14/2016ordered to third reading rules cal.330
06/15/2016substituted by s5216a
 05/16/2016PRINT NUMBER 5216A
 06/08/2016PASSED SENATE
 06/08/2016referred to ways and means
 06/15/2016substituted for a3072a
 06/15/2016ordered to third reading rules cal.330
 06/15/2016passed assembly
 06/15/2016returned to senate
 11/28/2016SIGNED CHAP.479
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A03072 Memo:

submitted in accordance with Assembly Rule III, Sec 1(f)
SPONSOR: Peoples-Stokes (MS)
  TITLE OF BILL: An act to amend the public health law, in relation to the lupus educa- tion and outreach program   PURPOSE OR GENERAL IDEA OF BILL: To create a statewide program within the Department of Health to promote awareness to the public and health care professionals concerning the causes and consequences of Lupus   SUMMARY OF SPECIFIC PROVISIONS: The Commissioner of Health shall establish, promote and maintain, within the department, a Lupus education and awareness program with an emphasis on minority populations and at risk communities to raise public aware- ness, educate consumers, and educate and train health professionals, human services providers and other audiences. This bill also allows the Department to accept gifts, grants, and donations from the federal government, foundations or other organizations and entities for fulfill- ing the obligations of the program.   JUSTIFICATION: Lupus is a chronic inflammatory disease that can affect various parts of the body, especially the skin, joints, blood and kidneys. Lupus is often called a "Women's Disease" despite the fact that many men are affected. Lupus affects more than 1.5 million people in the United States. Lupus can occur at any age, and in either sex, although it occurs 10-15 times more frequently among adult females than among adult males after puber- ty. About 9 out of 10 people who have Lupus are women. Lupus is three times more common in black women than in white women. It is also more common in women of Hispanic/Latina, Asian, and American Indian descent. Black and Hispanic/Latina women tend to develop symptoms at an earlier age than other women.   PRIOR LEGISLATIVE HISTORY: 2009-10: A.5854-Referred to Health, Reported to Ways and Means/ S.3679-Referred to Health, 2011-12: A.459-Referred to Health, Reported Ways and Means, Passed Assembly/ S. 5114-Referred to Health, Reported-Finance A.8461 of 2014 referred to Health/ S.5178 referred to health. Reported and committed to Finance.   FISCAL IMPLICATIONS: None.   EFFECTIVE DATE: This Act shall take effect immediately.
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A03072 Text:

                STATE OF NEW YORK
                               2015-2016 Regular Sessions
                   IN ASSEMBLY
                                    January 22, 2015
        Introduced  by  M. of A. PEOPLES-STOKES, BRINDISI, TITONE, THIELE, McDO-
          NALD -- read once and referred to the Committee on Health --  reported
          and  referred  to  the  Committee  on  Ways  and  Means  --  committee
          discharged, bill amended, ordered reprinted as amended and recommitted
          to said committee

        AN ACT to amend the public health law, in relation to the  lupus  educa-
          tion and outreach program
          The  People of the State of New York, represented in Senate and Assem-
        bly, do enact as follows:
     1    Section 1.  Legislative  intent.  The  legislature  hereby  finds  the
     2  following:
     3    (a)  Lupus is a serious, complex, debilitating autoimmune disease that
     4  can cause inflammation and tissue damage to virtually any  organ  system
     5  in  the body, including the skin, joints, other connective tissue, blood
     6  and blood vessels, heart, lungs, kidney, and brain.
     7    (b) Lupus research estimates that approximately one and a half to  two
     8  million Americans live with some form of lupus; lupus affects women nine
     9  times more often than men and eighty percent of newly diagnosed cases of
    10  lupus develop among women of childbearing age.
    11    (c)  Lupus  disproportionately  affects women of color -- it is two to
    12  three times more common among African-Americans, Hispanics,  Asians  and
    13  Native Americans and is generally more prevalent in minority populations
    14  -- a health disparity that remains unexplained. According to the Centers
    15  for  Disease  Control  and  Prevention  the  rate of lupus mortality has
    16  increased since the late 1970s and is higher among older  African-Ameri-
    17  can women.
    18    (d) No new drugs have been approved by the U.S. Food and Drug Adminis-
    19  tration  specifically  for lupus in nearly forty years and while current
    20  treatments for the disease can be effective, they can lead  to  damaging
    21  side effects.
         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.

        A. 3072--A                          2
     1    (e)  The  pain and fatigue associated with lupus can threaten people's
     2  ability to live independently, make it difficult to maintain  employment
     3  and  lead normal lives, and one in five people with lupus is disabled by
     4  the disease, and consequently receives support from government programs,
     5  including  Medicare,  Medicaid,  social  security disability, and social
     6  security supplemental income.
     7    (f) The estimated average annual cost  of  medical  treatment  for  an
     8  individual  with lupus can range between ten thousand dollars and thirty
     9  thousand dollars; for people who have the most serious  form  of  lupus,
    10  medical  costs  can  greatly  exceed  this amount, causing a significant
    11  economic, emotional and social burden to the entire family and society.
    12    (g) More than half of the people with lupus suffer four or more  years
    13  and  visit  three  or  more  physicians  before obtaining a diagnosis of
    14  lupus; early diagnosis of and commencement of treatment  for  lupus  can
    15  prevent or reduce serious organ damage, disability, and death.
    16    (h)  Despite  the magnitude of lupus and its impact on individuals and
    17  families, health professional and public understanding of lupus  remains
    18  low; only one of five Americans can provide even basic information about
    19  lupus,  and  awareness  of lupus is lowest among adults ages eighteen to
    20  thirty-four -- the age group most likely to develop symptoms of lupus.
    21    (i) Lupus is a significant  national  health  issue  that  deserves  a
    22  comprehensive  and coordinated response by state and federal governments
    23  with involvement of the health care provider, patient, and public health
    24  communities.
    25    § 2. Subdivision 1 of section 207 of the public health law is  amended
    26  by adding a new paragraph (m) to read as follows:
    27    (m)  Lupus, a debilitating autoimmune disease that can cause inflamma-
    28  tion and tissue damage to  virtually  any  organ  system  in  the  body,
    29  including  the  skin,  joints,  other connective tissue, blood and blood
    30  vessels, heart, lung, kidney and brain, and which affects women, partic-
    31  ularly women of color, in a disproportionate manner; provided  that  the
    32  program  shall include an advisory council under this section that shall
    33  include representatives of people with  lupus  and  their  families  and
    34  health care providers who specialize in treating lupus, among others.
    35    § 3. Subdivision 7 of section 207 of the public health law, as amended
    36  by  section  16 of part A of chapter 109 of the laws of 2010, is amended
    37  to read as follows:
    38    7. In addition to state funds appropriated  for  programs  under  this
    39  section,  the  commissioner  may  accept  grants  from public or private
    40  sources for these programs.  The  commissioner,  in  administering  this
    41  section,  shall  seek to coordinate the department's programs with other
    42  public and private programs, and  may  undertake  joint  or  cooperative
    43  programs  with other public or private entities, including making grants
    44  (within amounts appropriated therefor  and  consistent  with  applicable
    45  law) to public or not-for-profit entities.
    46    § 4. This act shall take effect immediately.
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