A08171 Summary:

BILL NOA08171A
 
SAME ASNo Same As
 
SPONSORLavine
 
COSPNSRWeinstein
 
MLTSPNSR
 
Amd SCPA, generally; amd §35, Judy L
 
Relates to replacing the term intellectually disabled with developmentally disabled; and relates to guardianship and health care decisions of persons with developmental disabilities.
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A08171 Actions:

BILL NOA08171A
 
06/01/2017referred to judiciary
06/07/2017reported referred to codes
06/13/2017amend and recommit to codes
06/13/2017print number 8171a
01/03/2018referred to codes
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A08171 Committee Votes:

JUDICIARY Chair:Weinstein DATE:06/07/2017AYE/NAY:18/1 Action: Favorable refer to committee Codes
WeinsteinAyePalumboAye
DinowitzAyeMontesanoAye
TitusExcusedBarclayAye
LavineAyeGoodellAye
ZebrowskiAyeGrafAye
WeprinAyeLupinacciAye
BraunsteinAye
SimotasExcused
QuartAye
TitoneAye
BuchwaldNay
SteckAye
SeawrightAye
SimonAye
JoynerAye

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A08171 Floor Votes:

There are no votes for this bill in this legislative session.
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A08171 Text:



 
                STATE OF NEW YORK
        ________________________________________________________________________
 
                                         8171--A
 
                               2017-2018 Regular Sessions
 
                   IN ASSEMBLY
 
                                      June 1, 2017
                                       ___________
 
        Introduced  by  M.  of A. LAVINE, WEINSTEIN -- read once and referred to
          the Committee on Judiciary -- reported and referred to  the  Committee
          on  Codes  -- committee discharged, bill amended, ordered reprinted as
          amended and recommitted to said committee
 
        AN ACT to amend the surrogate's court procedure act  and  the  judiciary
          law,  in  relation  to replacing the term intellectually disabled with
          developmentally disabled; and guardianship and health  care  decisions
          of  persons  with  developmental  disabilities;  and to repeal section
          1750-a of the surrogate's court procedure act relating thereto
 
          The People of the State of New York, represented in Senate and  Assem-
        bly, do enact as follows:
 
     1    Section  1.  Section  1750  of the surrogate's court procedure act, as
     2  amended by chapter 198 of the laws  of  2016,  is  amended  to  read  as
     3  follows:
     4  § 1750. Guardianship  of  persons [who are intellectually disabled] with
     5             developmental disabilities
     6    1. When it shall appear to the satisfaction of the court that a person
     7  is a person [who is intellectually disabled] with a developmental  disa-
     8  bility  within  the meaning of subdivision twenty-two of section 1.03 of
     9  the mental hygiene law, and that such person, as a result of such devel-
    10  opmental disability,  exhibits  significant  impairment  of  general  or
    11  specific  areas of intellectual functioning and/or adaptive behaviors in
    12  specified domains as enumerated in subdivision eight of  section  seven-
    13  teen  hundred  fifty-two  of  this  article,  the court is authorized to
    14  appoint a guardian of the person or of the property or of both  if  such
    15  appointment  of  a  guardian  or  guardians is [in the best interest of]
    16  shown by clear and convincing evidence that the person [who is intellec-
    17  tually disabled] with a developmental disability  is  likely  to  suffer
    18  harm  or is unable to provide for personal needs and/or property manage-
    19  ment needs or cannot adequately understand and appreciate the nature and
    20  consequences of such inability,  and  where  the  respondent  has  unmet
 
         EXPLANATION--Matter in italics (underscored) is new; matter in brackets
                              [ ] is old law to be omitted.
                                                                   LBD10185-05-7

        A. 8171--A                          2
 
     1  needs.    Such  appointment  shall be made pursuant to the provisions of
     2  this article[, provided however that the provisions of section seventeen
     3  hundred fifty-a of this article shall not apply to the appointment of  a
     4  guardian  or  guardians of a person who is intellectually disabled]. The
     5  nature and duration of the guardianship must bear a reasonable  relation
     6  to the purpose for which the person is appointed a guardian.
     7    [1.  For  the purposes of this article, a person who is intellectually
     8  disabled is a person who has been certified by  one  licensed  physician
     9  and  one  licensed  psychologist, or by two licensed physicians at least
    10  one of whom is familiar with or has professional knowledge in  the  care
    11  and  treatment of persons with an intellectual disability, having quali-
    12  fications to make such certification, as being incapable to  manage  him
    13  or herself and/or his or her affairs by reason of intellectual disabili-
    14  ty  and that such condition is permanent in nature or likely to continue
    15  indefinitely.]
    16    2. Every guardianship entered into pursuant to this article  prior  to
    17  the  effective  date  of  this subdivision, including orders and decrees
    18  pursuant to section seventeen hundred fifty-seven of this article, shall
    19  remain in full force and effect thereafter, except as  amended  pursuant
    20  to section seventeen hundred fifty-five of this article or as ordered by
    21  the  court;  and  any such guardianship shall be administered consistent
    22  with the substantive and procedural requirements set forth in this arti-
    23  cle.
    24    3. Every [such certification  pursuant  to  subdivision  one  of  this
    25  section,]  order  and decree made on or after the effective date of this
    26  subdivision, shall include a specific determination by  [such  physician
    27  and psychologist, or by such physicians,] the issuing court as to wheth-
    28  er  the  person  [who  is  intellectually disabled] with a developmental
    29  disability has the capacity to make health care decisions, as defined by
    30  subdivision three of section twenty-nine hundred eighty  of  the  public
    31  health law, for himself or herself. A determination that the person [who
    32  is  intellectually  disabled]  with  a  developmental disability has the
    33  capacity to make health care decisions shall not preclude  the  appoint-
    34  ment  of  a guardian pursuant to this section to make other decisions on
    35  behalf of the person [who is intellectually disabled]  with  a  develop-
    36  mental  disability.    The  absence of this determination in the case of
    37  guardians appointed prior to [the effective date  of  this  subdivision]
    38  March  sixteenth,  two thousand three, shall not preclude such guardians
    39  from making health  care  decisions.  Further,  guardians  appointed  by
    40  orders  and/or decrees issued prior to the effective date of this subdi-
    41  vision shall have authority in all areas, unless otherwise stated.
    42    § 2.  Section  1750-a  of  the  surrogate's  court  procedure  act  is
    43  REPEALED.
    44    § 3. Section 1750-b of the surrogate's court procedure act, as amended
    45  by chapter 198 of the laws of 2016, is amended to read as follows:
    46  § 1750-b. Health  care  decisions  for  persons  [who are intellectually
    47              disabled] with developmental disabilities
    48    1. Scope of authority.  As used in this  section  the  term  "develop-
    49  mental disability" shall have the same meaning as defined in subdivision
    50  twenty-two  of  section  1.03  of the mental hygiene law. Unless specif-
    51  ically prohibited by the court  after  consideration  of  [the  determi-
    52  nation,  if  any, regarding] a person [who is intellectually disabled's]
    53  with a developmental disability's capacity to  make  health  care  deci-
    54  sions,  which  is  required  by  section seventeen hundred fifty of this
    55  article, the guardian of  such  person  appointed  pursuant  to  section
    56  seventeen hundred fifty of this article shall have the authority to make

        A. 8171--A                          3
 
     1  any  and  all  health  care  decisions, as defined by subdivision six of
     2  section twenty-nine hundred eighty of the public health law,  on  behalf
     3  of  the  person  [who  is  intellectually disabled] with a developmental
     4  disability that such person could make if such person had capacity. Such
     5  decisions  may include decisions to withhold or withdraw life-sustaining
     6  treatment. For purposes of  this  section,  "life-sustaining  treatment"
     7  means  medical  treatment,  including  cardiopulmonary resuscitation and
     8  nutrition and hydration provided by means of medical treatment, which is
     9  sustaining life functions and without  which,  according  to  reasonable
    10  medical  judgment,  the  patient will die within a relatively short time
    11  period. Cardiopulmonary resuscitation is presumed to be  life-sustaining
    12  treatment  without  the  necessity of a medical judgment by an attending
    13  physician. The provisions of this article are not intended to permit  or
    14  promote suicide, assisted suicide or euthanasia; accordingly, nothing in
    15  this  section  shall be construed to permit a guardian to consent to any
    16  act or omission to which the person  [who  is  intellectually  disabled]
    17  with  a  developmental  disability  could not consent if such person had
    18  capacity.
    19    (a) For the purposes of making a  decision  to  withhold  or  withdraw
    20  life-sustaining  treatment  pursuant  to  this section, in the case of a
    21  person for whom no guardian  has  been  appointed  pursuant  to  section
    22  seventeen  hundred fifty [or seventeen hundred fifty-a] of this article,
    23  a "guardian" shall also mean a family member of a person  who  [(i)  has
    24  intellectual  disability,  or  (ii)]  has a developmental disability, as
    25  defined in subdivision twenty-two of section 1.03 of the mental  hygiene
    26  law,  [which  (A)  includes intellectual disability, or (B) results in a
    27  similar impairment  of  general  intellectual  functioning  or  adaptive
    28  behavior  so  that  such  person  is  incapable  of  managing himself or
    29  herself, and/or his or her affairs by reason of such developmental disa-
    30  bility] and that such person, as a result of such developmental disabil-
    31  ity, exhibits significant impairment of the ability to make his  or  her
    32  own health care decisions. Qualified family members shall be included in
    33  a prioritized list of said family members pursuant to regulations estab-
    34  lished  by  the commissioner of the office for people with developmental
    35  disabilities. Such family members must have a  significant  and  ongoing
    36  involvement  in  a  person's  life so as to have sufficient knowledge of
    37  their needs and, when reasonably known or  ascertainable,  the  person's
    38  wishes,  including  moral and religious beliefs. In the case of a person
    39  who was a resident of the  former  Willowbrook  state  school  on  March
    40  seventeenth, nineteen hundred seventy-two and those individuals who were
    41  in  community  care  status  on  that  date and subsequently returned to
    42  Willowbrook or a related facility, who  are  fully  represented  by  the
    43  consumer  advisory board and who have no guardians appointed pursuant to
    44  this article or have no qualified family members to make  such  a  deci-
    45  sion,  then  a "guardian" shall also mean the Willowbrook consumer advi-
    46  sory board. A decision of such family member or the Willowbrook consumer
    47  advisory board to withhold or withdraw life-sustaining  treatment  shall
    48  be  subject  to  all of the protections, procedures and safeguards which
    49  apply to the decision of a guardian to withhold  or  withdraw  life-sus-
    50  taining treatment pursuant to this section.
    51    In the case of a person for whom no guardian has been appointed pursu-
    52  ant  to  this article or for whom there is no qualified family member or
    53  the Willowbrook consumer advisory board available to make such  a  deci-
    54  sion,  a  "guardian" shall also mean, notwithstanding the definitions in
    55  section 80.03 of the mental hygiene  law,  a  surrogate  decision-making
    56  committee,  as  defined in article eighty of the mental hygiene law. All

        A. 8171--A                          4
 
     1  declarations and procedures, including expedited procedures,  to  comply
     2  with this section shall be established by regulations promulgated by the
     3  [commission  on  quality of care and advocacy for persons with disabili-
     4  ties] justice center for the protection of people with special needs, as
     5  established by article twenty of the executive law.
     6    (b)  Regulations establishing the prioritized list of qualified family
     7  members required by paragraph (a) of this subdivision shall be developed
     8  by the commissioner of the office for people with developmental disabil-
     9  ities in conjunction with  parents,  advocates  and  family  members  of
    10  persons  [who  are intellectually disabled] with developmental disabili-
    11  ties. Regulations to implement the authority of the Willowbrook consumer
    12  advisory board pursuant to paragraph (a)  of  this  subdivision  may  be
    13  promulgated  by  the commissioner of the office for people with develop-
    14  mental disabilities with advice from the Willowbrook  consumer  advisory
    15  board.
    16    (c)  Notwithstanding  any provision of law to the contrary, the formal
    17  determinations required pursuant to section seventeen hundred  fifty  of
    18  this article shall only apply to guardians appointed pursuant to section
    19  seventeen hundred fifty [or seventeen hundred fifty-a] of this article.
    20    2.  Decision-making standard. (a) The guardian shall base all advocacy
    21  and health care decision-making  solely  and  exclusively  on  the  best
    22  interests of the person [who is intellectually disabled] with a develop-
    23  mental  disability  and,  when  reasonably  known  or ascertainable with
    24  reasonable diligence, on [the person who is  intellectually  disabled's]
    25  such person's wishes, including moral and religious beliefs.
    26    (b)  An  assessment  of  the person [who is intellectually disabled's]
    27  with a developmental disability's best interests shall include consider-
    28  ation of:
    29    (i) the dignity and uniqueness of every person;
    30    (ii) the preservation, improvement or restoration of the  person  [who
    31  is intellectually disabled's] with a developmental disability's health;
    32    (iii) the relief of the person [who is intellectually disabled's] with
    33  a  developmental  disability's suffering by means of palliative care and
    34  pain management;
    35    (iv)  the  unique  nature  of  artificially  provided   nutrition   or
    36  hydration,  and the effect it may have on the person [who is intellectu-
    37  ally disabled] with a developmental disability; and
    38    (v) the entire medical condition of the person.
    39    (c) No health care decision shall be influenced in any way by:
    40    (i) a presumption that persons [who are intellectually disabled]  with
    41  developmental  disabilities  are  not  entitled  to  the  full and equal
    42  rights, equal protection, respect, medical care and dignity afforded  to
    43  persons  without  [an intellectual disability or a] developmental [disa-
    44  bility] disabilities; or
    45    (ii) financial considerations of the guardian, as such  considerations
    46  affect the guardian, a health care provider or any other party.
    47    3. Right to receive information. Subject to the provisions of sections
    48  33.13  and  33.16 of the mental hygiene law, the guardian shall have the
    49  right to receive  all  medical  information  and  medical  and  clinical
    50  records  necessary  to make informed decisions regarding the person [who
    51  is intellectually disabled's] with a developmental  disability's  health
    52  care.
    53    4.  Life-sustaining treatment. The guardian shall have the affirmative
    54  obligation to advocate for the full and efficacious provision of  health
    55  care,  including life-sustaining treatment. In the event that a guardian
    56  makes a decision to withdraw or withhold life-sustaining treatment  from

        A. 8171--A                          5
 
     1  a person [who is intellectually disabled] with a developmental disabili-
     2  ty:
     3    (a)  The attending physician, as defined in subdivision two of section
     4  twenty-nine hundred eighty of the public health law, must confirm  to  a
     5  reasonable degree of medical certainty that the person [who is intellec-
     6  tually  disabled] with a developmental disability lacks capacity to make
     7  health care decisions.  The determination thereof shall be  included  in
     8  the person [who is intellectually disabled's] with a developmental disa-
     9  bility's  medical  record,  and shall contain such attending physician's
    10  opinion regarding the cause and nature of the person [who is intellectu-
    11  ally disabled's] with a developmental disability's incapacity as well as
    12  its extent and probable duration. The attending physician who makes  the
    13  confirmation  shall  consult  with  another  physician,  or  a  licensed
    14  psychologist, to further confirm the person [who is intellectually disa-
    15  bled's] with a developmental disability's lack of capacity. The  attend-
    16  ing  physician  who makes the confirmation, or the physician or licensed
    17  psychologist with whom the attending physician  consults,  must  (i)  be
    18  employed  by  a  developmental  disabilities  services  office  named in
    19  section 13.17 of the mental hygiene law or employed by  the  office  for
    20  people  with developmental disabilities to provide treatment and care to
    21  people with developmental disabilities, or (ii) have been employed for a
    22  minimum of two years to render care and service in a facility or program
    23  operated, licensed or authorized by the office for people with  develop-
    24  mental  disabilities, or (iii) have been approved by the commissioner of
    25  the office for people with developmental disabilities in accordance with
    26  regulations promulgated by such  commissioner.  Such  regulations  shall
    27  require  that  a  physician or licensed psychologist possess specialized
    28  training or three years experience in treating [intellectual disability]
    29  persons with developmental disabilities. A record of  such  consultation
    30  shall  be included in the person [who is intellectually disabled's] with
    31  developmental disability's medical record.
    32    (b) The attending physician, as defined in subdivision two of  section
    33  twenty-nine  hundred  eighty  of the public health law, with the concur-
    34  rence of another physician with  whom  such  attending  physician  shall
    35  consult,  must determine to a reasonable degree of medical certainty and
    36  note on the person [who is intellectually disabled's]  with  a  develop-
    37  mental disability's chart that:
    38    (i)  the  person [who is intellectually disabled] with a developmental
    39  disability has a medical condition as follows:
    40    A. a terminal condition, as defined  in  subdivision  twenty-three  of
    41  section twenty-nine hundred sixty-one of the public health law; or
    42    B. permanent unconsciousness; or
    43    C. a medical condition other than such person's [intellectual disabil-
    44  ity]  developmental disability which requires life-sustaining treatment,
    45  is irreversible and which will continue indefinitely; and
    46    (ii) the  life-sustaining  treatment  would  impose  an  extraordinary
    47  burden on such person, in light of:
    48    A.  such  person's medical condition, other than such person's [intel-
    49  lectual disability] developmental disability; and
    50    B. the expected outcome of  the  life-sustaining  treatment,  notwith-
    51  standing such person's [intellectual disability] developmental disabili-
    52  ty; and
    53    (iii)  in  the case of a decision to withdraw or withhold artificially
    54  provided nutrition or hydration:
    55    A. there is no reasonable hope of maintaining life; or

        A. 8171--A                          6
 
     1    B. the artificially provided nutrition or hydration poses an  extraor-
     2  dinary burden.
     3    (c)  The  guardian  shall  express  a decision to withhold or withdraw
     4  life-sustaining treatment either:
     5    (i) in writing, dated and signed in the presence of one witness  eigh-
     6  teen years of age or older who shall sign the decision, and presented to
     7  the  attending physician, as defined in subdivision two of section twen-
     8  ty-nine hundred eighty of the public health law; or
     9    (ii) orally, to two persons eighteen years of age or older,  at  least
    10  one  of  whom  is  the  person [who is intellectually disabled's] with a
    11  developmental disability's attending physician, as defined  in  subdivi-
    12  sion two of section twenty-nine hundred eighty of the public health law.
    13    (d)  The attending physician, as defined in subdivision two of section
    14  twenty-nine hundred eighty of the public health  law,  who  is  provided
    15  with the decision of a guardian shall include the decision in the person
    16  [who  is  intellectually  disabled's]  with a developmental disability's
    17  medical chart, and shall either:
    18    (i) promptly issue an order to withhold  or  withdraw  life-sustaining
    19  treatment from the person [who is intellectually disabled] with a devel-
    20  opmental  disability, and inform the staff responsible for such person's
    21  care, if any, of the order; or
    22    (ii) promptly object to such decision, in accordance with  subdivision
    23  five of this section.
    24    (e)  At least forty-eight hours prior to the implementation of a deci-
    25  sion to withdraw life-sustaining treatment, or at the earliest  possible
    26  time prior to the implementation of a decision to withhold life-sustain-
    27  ing treatment, the attending physician shall notify:
    28    (i)  the  person [who is intellectually disabled] with a developmental
    29  disability, except if the attending physician determines, in writing and
    30  in consultation with another physician or a licensed psychologist, that,
    31  to a reasonable degree of medical certainty,  the  person  would  suffer
    32  immediate and severe injury from such notification. The attending physi-
    33  cian  who  makes the confirmation, or the physician or licensed psychol-
    34  ogist with whom the attending physician consults, shall:
    35    A. be employed by a developmental disabilities services  office  named
    36  in section 13.17 of the mental hygiene law or employed by the office for
    37  people  with developmental disabilities to provide treatment and care to
    38  people with developmental disabilities, or
    39    B. have been employed for a minimum of two years to  render  care  and
    40  service in a facility operated, licensed or authorized by the office for
    41  people with developmental disabilities, or
    42    C.  have  been  approved  by the commissioner of the office for people
    43  with developmental disabilities in accordance with  regulations  promul-
    44  gated by such commissioner. Such regulations shall require that a physi-
    45  cian  or  licensed  psychologist  possess  specialized training or three
    46  years experience in  treating  [intellectual  disability]  developmental
    47  disabilities.  A  record  of  such consultation shall be included in the
    48  person [who is intellectually disabled's] with a developmental disabili-
    49  ty's medical record;
    50    (ii) if the person is in or was transferred from a residential facili-
    51  ty operated, licensed or authorized by the office for people with devel-
    52  opmental disabilities, the chief executive  officer  of  the  agency  or
    53  organization  operating  such  facility  and  the  mental  hygiene legal
    54  service; and

        A. 8171--A                          7
 
     1    (iii) if the person is not in and was  not  transferred  from  such  a
     2  facility  or  program,  the  commissioner  of the office for people with
     3  developmental disabilities, or his or her designee.
     4    5.  Objection  to  health care decision. (a) Suspension. A health care
     5  decision made pursuant to subdivision four  of  this  section  shall  be
     6  suspended,  pending  judicial  review, except if the suspension would in
     7  reasonable medical judgment be likely to result  in  the  death  of  the
     8  person [who is intellectually disabled] with a developmental disability,
     9  in the event of an objection to that decision at any time by:
    10    (i)  the  person [who is intellectually disabled] with a developmental
    11  disability on whose behalf such decision was made; or
    12    (ii) a parent or adult sibling who either resides with  or  has  main-
    13  tained substantial and continuous contact with the person [who is intel-
    14  lectually disabled] with a developmental disability; or
    15    (iii)  the  attending  physician,  as  defined  in  subdivision two of
    16  section twenty-nine hundred eighty of the public health law; or
    17    (iv) any other health care  practitioner  providing  services  to  the
    18  person [who is intellectually disabled] with a developmental disability,
    19  who  is licensed pursuant to article one hundred thirty-one, one hundred
    20  thirty-one-B, one hundred  thirty-two,  one  hundred  thirty-three,  one
    21  hundred  thirty-six, one hundred thirty-nine, one hundred forty-one, one
    22  hundred forty-three, one hundred forty-four,  one  hundred  fifty-three,
    23  one hundred fifty-four, one hundred fifty-six, one hundred fifty-nine or
    24  one hundred sixty-four of the education law; or
    25    (v)  the  chief  executive  officer identified in subparagraph (ii) of
    26  paragraph (e) of subdivision four of this section; or
    27    (vi) if the person is in or was transferred from a residential facili-
    28  ty or program operated, approved or licensed by the  office  for  people
    29  with developmental disabilities, the mental hygiene legal service; or
    30    (vii)  if  the  person  is  not in and was not transferred from such a
    31  facility or program, the commissioner of  the  office  for  people  with
    32  developmental disabilities, or his or her designee.
    33    (b)  Form  of objection. Such objection shall occur orally or in writ-
    34  ing.
    35    (c) Notification. In the event of the  suspension  of  a  health  care
    36  decision pursuant to this subdivision, the objecting party shall prompt-
    37  ly notify the guardian and the other parties identified in paragraph (a)
    38  of  this  subdivision,  and  the  attending  physician shall record such
    39  suspension in the person  [who  is  intellectually  disabled's]  with  a
    40  developmental disability's medical chart.
    41    (d)  Dispute  mediation. In the event of an objection pursuant to this
    42  subdivision, at the request of the objecting party or person  or  entity
    43  authorized  to  act as a guardian under this section, except a surrogate
    44  decision making committee established pursuant to article eighty of  the
    45  mental  hygiene law, such objection shall be referred to a dispute medi-
    46  ation system, established pursuant to section two thousand nine  hundred
    47  seventy-two  of  the  public  health law or similar entity for mediating
    48  disputes in a hospice, such as a patient's advocate's  office,  hospital
    49  chaplain's  office  or  ethics  committee,  as  described in writing and
    50  adopted by the governing authority  of  such  hospice,  for  non-binding
    51  mediation.  In  the  event  that  such dispute cannot be resolved within
    52  seventy-two hours or no such mediation entity exists  or  is  reasonably
    53  available  for  mediation  of  a dispute, the objection shall proceed to
    54  judicial review pursuant to this subdivision. The party requesting medi-
    55  ation shall provide notification to those  parties  entitled  to  notice
    56  pursuant to paragraph (a) of this subdivision.

        A. 8171--A                          8
 
     1    6.  Special  proceeding authorized. The guardian, the attending physi-
     2  cian, as defined in  subdivision  two  of  section  twenty-nine  hundred
     3  eighty  of the public health law, the chief executive officer identified
     4  in subparagraph (ii) of  paragraph  (e)  of  subdivision  four  of  this
     5  section,  the  mental  hygiene legal service (if the person is in or was
     6  transferred from a residential facility or program operated, approved or
     7  licensed by the office for people with  developmental  disabilities)  or
     8  the  commissioner  of the office for people with developmental disabili-
     9  ties or his or her designee (if the person is not in and was not  trans-
    10  ferred  from such a facility or program) may commence a special proceed-
    11  ing in a court of competent jurisdiction with  respect  to  any  dispute
    12  arising  under  this  section,  including objecting to the withdrawal or
    13  withholding of life-sustaining  treatment  because  such  withdrawal  or
    14  withholding  is  not  in  accord  with  the  criteria  set forth in this
    15  section.
    16    7. Provider's obligations. (a) A health  care  provider  shall  comply
    17  with the health care decisions made by a guardian in good faith pursuant
    18  to  this  section, to the same extent as if such decisions had been made
    19  by the person [who is  intellectually  disabled]  with  a  developmental
    20  disability, if such person had capacity.
    21    (b) Notwithstanding paragraph (a) of this subdivision, nothing in this
    22  section  shall  be  construed  to  require a private hospital to honor a
    23  guardian's health care decision that the hospital would not honor if the
    24  decision had been made by the person [who  is  intellectually  disabled]
    25  with  a  developmental  disability, if such person had capacity, because
    26  the decision is contrary to a formally adopted  written  policy  of  the
    27  hospital  expressly  based  on religious beliefs or sincerely held moral
    28  convictions central to the  hospital's  operating  principles,  and  the
    29  hospital  would  be  permitted by law to refuse to honor the decision if
    30  made by such person, provided:
    31    (i) the hospital has informed the guardian of such policy prior to  or
    32  upon admission, if reasonably possible; and
    33    (ii)  the person [who is intellectually disabled] with a developmental
    34  disability is transferred promptly to another hospital that  is  reason-
    35  ably  accessible  under  the  circumstances  and is willing to honor the
    36  guardian's decision. If the guardian is unable or unwilling  to  arrange
    37  such  a  transfer,  the  hospital's refusal to honor the decision of the
    38  guardian shall constitute an objection pursuant to subdivision  five  of
    39  this section.
    40    (c) Notwithstanding paragraph (a) of this subdivision, nothing in this
    41  section shall be construed to require an individual health care provider
    42  to honor a guardian's health care decision that the individual would not
    43  honor if the decision had been made by the person [who is intellectually
    44  disabled]  with a developmental disability, if such person had capacity,
    45  because the decision is contrary to the individual's  religious  beliefs
    46  or sincerely held moral convictions, provided the individual health care
    47  provider  promptly informs the guardian and the facility, if any, of his
    48  or her refusal to honor the guardian's  decision.  In  such  event,  the
    49  facility  shall  promptly transfer responsibility for the person [who is
    50  intellectually disabled] with  a  developmental  disability  to  another
    51  individual  health  care  provider willing to honor the guardian's deci-
    52  sion. The individual health care provider shall cooperate in  facilitat-
    53  ing such transfer of the patient.
    54    (d)  Notwithstanding  the  provisions  of  any other paragraph of this
    55  subdivision, if a guardian  directs  the  provision  of  life-sustaining
    56  treatment,  the  denial of which in reasonable medical judgment would be

        A. 8171--A                          9
 
     1  likely to result in the death of the person [who is intellectually disa-
     2  bled] with a developmental disability, a hospital or  individual  health
     3  care  provider  that does not wish to provide such treatment shall none-
     4  theless  comply  with the guardian's decision pending either transfer of
     5  the person [who is intellectually disabled] with a  developmental  disa-
     6  bility  to  a  willing  hospital  or individual health care provider, or
     7  judicial review.
     8    (e) Nothing in this section shall affect or diminish the authority  of
     9  a  surrogate  decision-making  panel to render decisions regarding major
    10  medical treatment pursuant to article eighty of the mental hygiene law.
    11    8. Immunity. (a) Provider immunity. No health care provider or employ-
    12  ee thereof shall be subjected to criminal  or  civil  liability,  or  be
    13  deemed  to  have engaged in unprofessional conduct, for honoring reason-
    14  ably and in good faith a health care decision  by  a  guardian,  or  for
    15  other  actions  taken  reasonably  and  in  good  faith pursuant to this
    16  section.
    17    (b) Guardian immunity. No guardian shall be subjected to  criminal  or
    18  civil liability for making a health care decision reasonably and in good
    19  faith pursuant to this section.
    20    §  4.  Section 1751 of the surrogate's court procedure act, as amended
    21  by chapter 198 of the laws of 2016, is amended to read as follows:
    22  § 1751. Petition for appointment; by whom made
    23    (a) A petition for the appointment of a guardian  [of  the  person  or
    24  property,  or  both,]  of  a person [who is intellectually disabled or a
    25  person who is developmentally disabled] with a developmental  disability
    26  pursuant  to this article may be made by the person with a developmental
    27  disability when such person is eighteen years of age or older, a parent,
    28  spouse, sibling, adult child or any  other  interested  person  eighteen
    29  years  of  age  or  older on behalf of the person [who is intellectually
    30  disabled or a person who is developmentally disabled]  with  a  develop-
    31  mental disability including a corporation authorized to serve as a guar-
    32  dian as provided for by this article[, or by the person who is intellec-
    33  tually  disabled  or  a person who is developmentally disabled when such
    34  person is eighteen years of age or older].
    35    (b) A person with a developmental disability may knowingly and  volun-
    36  tarily  consent  to the appointment of a guardian pursuant to this arti-
    37  cle.
    38    § 5. The surrogate's court procedure act is amended by  adding  a  new
    39  section 1751-a to read as follows:
    40  § 1751-a. Petition for appointment; where made (venue)
    41    1. A proceeding under this article shall be brought in the surrogate's
    42  court  within  the county in which the person with a developmental disa-
    43  bility resides, or is physically present at the time the  proceeding  is
    44  commenced.  If  the person with a developmental disability alleged to be
    45  in need of a guardian is being cared for as a resident  in  a  facility,
    46  the  residence  of that person shall be deemed to be in the county where
    47  the facility is located and the proceeding  shall  be  brought  in  that
    48  county,  subject  to  application by an interested party for a change in
    49  venue  to  another  county  due  to  inconvenience  to  the  parties  or
    50  witnesses,  or  due to the condition of the person alleged to be in need
    51  of a guardian.
    52    2. After the appointment of a guardian, any  proceeding  to  modify  a
    53  prior  order shall be brought in the surrogate's court which granted the
    54  prior order, unless at the time of the application to modify  the  order
    55  the  person  with a developmental disability resides elsewhere, in which
    56  case the proceeding shall be brought in the county where the person with

        A. 8171--A                         10
 
     1  a developmental disability resides, without the need  for  a  motion  to
     2  transfer venue.
     3    §  6.  Section 1752 of the surrogate's court procedure act, as amended
     4  by chapter 198 of the laws of 2016, is amended to read as follows:
     5  § 1752. Petition for appointment; contents
     6    The petition for the appointment of a guardian shall be filed with the
     7  court on forms to be prescribed by the state chief administrator of  the
     8  courts.  Such petition for a guardian of a person [who is intellectually
     9  disabled or a person who is developmentally disabled]  with  a  develop-
    10  mental  disability  shall  include, but not be limited to, the following
    11  information:
    12    1. the full name, date of birth and residence of the  person  [who  is
    13  intellectually  disabled  or  a  person who is developmentally disabled]
    14  with a developmental disability;
    15    2. the name, age, address and relationship or interest  of  the  peti-
    16  tioner  to the person [who is intellectually disabled or a person who is
    17  developmentally disabled] with a developmental disability;
    18    3. the names and addresses, if known, of the father, the mother, adult
    19  children, adult siblings [if eighteen years of age or  older,]  and  the
    20  spouse  [and  primary  care  physician  if other than a physician having
    21  submitted a certification with the petition, if any,] of the person [who
    22  is intellectually disabled or a person who is developmentally  disabled]
    23  with  a developmental disability and whether or not they are living, and
    24  if living, their addresses and the names and addresses  of  the  nearest
    25  distributees  of  full  age  who  are domiciliaries, if both parents are
    26  dead;
    27    4. the name and address of the person [with whom  the  person  who  is
    28  intellectually  disabled  or  a]  caring for the person [who is develop-
    29  mentally disabled] with a developmental disability,  or  with  whom  the
    30  person with a developmental disability resides if other than the parents
    31  or spouse;
    32    5.  the  name  and  address of any person with significant and ongoing
    33  involvement in the life of the person with a developmental disability so
    34  as to have sufficient knowledge of their  needs,  if  such  persons  are
    35  known to the petitioner;
    36    6.  the  name,  age,  address, education and other qualifications, and
    37  consent of the proposed guardian, standby  and  alternate  guardian,  if
    38  other  than  the parent, spouse, adult child if eighteen years of age or
    39  older or adult sibling if eighteen years of age or older,  and  if  such
    40  parent,  spouse  or adult child be living, why any of them should not be
    41  appointed guardian;
    42    [6.] 7. the estimated value of real  and  personal  property  and  the
    43  annual  income  therefrom  and  any  other income including governmental
    44  entitlements to which the person  [who  is  intellectually  disabled  or
    45  person  who is developmentally disabled] with a developmental disability
    46  is entitled; [and
    47    7. any circumstances which the court should  consider  in  determining
    48  whether  it is in the best interests of the person who is intellectually
    49  disabled or person who is developmentally disabled to not be present  at
    50  the hearing if conducted.]
    51    8.   factual allegations forming the basis for the petition, including
    52  facts relating to the person's functional limitations which  impair  his
    53  or her ability to provide for personal and/or property management needs,
    54  and  the  person's  lack of understanding and appreciation of the nature
    55  and consequences of his or her functional limitations;

        A. 8171--A                         11
 
     1    9. the particular powers being sought under their relationship to  the
     2  functional  level and needs of the person with a developmental disabili-
     3  ty;
     4    10.  an enumeration of the specific domains in which the person with a
     5  developmental  disability  is  alleged  to be in need of a guardian or a
     6  statement that full guardianship is  sought.  Specific  domains  may  be
     7  included which may include:
     8    (i)  consent  to or refusal to consent to health care or other profes-
     9  sional care;
    10    (ii) management of money or other income, assets or property;
    11    (iii) access to confidential and other sensitive information;
    12    (iv) choices involving education, training, employment,  supports  and
    13  services;
    14    (v) requesting advocacy, legal or other professional services;
    15    (vi) choice of residence and shared living arrangements;
    16    (vii) choices as to social and recreational activity;
    17    (viii) decisions concerning travel; and
    18    (ix)  application  for  government-sponsored  or private insurance and
    19  benefits; and
    20    11. a  statement  of  the  alternatives  to  guardianship  considered,
    21  including but not limited to the execution of a health care proxy, power
    22  of  attorney,  representative  payee, service coordination, and/or other
    23  social support services, other available supported or  shared  decision-
    24  making,  and  surrogate  decision-making  committee, and reasons for the
    25  declination of such alternatives.
    26    § 7. Section 1753 of the surrogate's court procedure act,  as  amended
    27  by chapter 198 of the laws of 2016, is amended to read as follows:
    28  § 1753. Persons to be served and noticed
    29    1.  Upon  [presentation]  filing  of the petition, process shall issue
    30  to[:
    31    (a) the parent or parents, adult children, if the petitioner is  other
    32  than a parent, adult siblings, if the petitioner is other than a parent,
    33  and if the person who is intellectually disabled or person who is devel-
    34  opmentally  disabled  is married, to the spouse, if their residences are
    35  known;
    36    (b) the person having care and custody of the person who is  intellec-
    37  tually  disabled or person who is developmentally disabled, or with whom
    38  such person resides if other than the parents or spouse; and
    39    (c) the person who is intellectually disabled or person who is  devel-
    40  opmentally disabled if fourteen years of age or older for whom an appli-
    41  cation has been made in such person's behalf.
    42    2. Upon presentation of the petition, notice of such petition shall be
    43  served by certified mail to:
    44    (a)  the adult siblings if the petitioner is a parent, and adult chil-
    45  dren if the petitioner is a parent;
    46    (b) the mental hygiene legal service in the judicial department  where
    47  the  facility,  as  defined  in  subdivision (a) of section 47.01 of the
    48  mental hygiene law, is located if the person who is intellectually disa-
    49  bled or person who is developmentally disabled resides in such a facili-
    50  ty;
    51    (c) in all cases, to the director in charge of a facility licensed  or
    52  operated  by  an  agency  of the state of New York, if the person who is
    53  intellectually  disabled  or  person  who  is  developmentally  disabled
    54  resides in such facility;
    55    (d)  one  other  person  if designated in writing by the person who is
    56  intellectually disabled or person who is developmentally disabled; and

        A. 8171--A                         12

     1    (e) such other persons as the court may deem proper] the person with a
     2  developmental disability, if the petitioner is  other  than  the  person
     3  with a developmental disability alleged to be in need of a guardian. Any
     4  process  served upon the person with a developmental disability shall be
     5  accompanied  by  a simplified, clear and easily readable form statement,
     6  developed by the office of court administration, including the right  of
     7  the  person  to contest the appointment of the guardian to be present at
     8  hearings related to the proceeding, to be represented by an attorney and
     9  a statement about the nature and implications of the proceedings.
    10    2. Upon filing of the petition, notice of the petition shall  be  sent
    11  by  certified mail to the last known address of the following, except if
    12  any of the following is also the petitioner:
    13    (a) parents, spouse, adult children, and adult siblings of the  person
    14  alleged to be in need of the guardian;
    15    (b)  individuals  listed in the petition pursuant to section seventeen
    16  hundred fifty-two of this article and subdivisions four and five of this
    17  section;
    18    (c) mental hygiene legal service in the judicial department where  the
    19  person with a developmental disability resides;
    20    (d)  the  director  in charge of a facility licensed or operated by an
    21  agency of the state of New York, if  the  person  with  a  developmental
    22  disability resides in such facility;
    23    (e)  any  other  person  if designated in writing by the person with a
    24  developmental disability; and
    25    (f) such other persons as the court may deem proper.
    26    3. Within five days of the filing of the petition, a full copy of said
    27  petition shall be served by certified mail to the mental  hygiene  legal
    28  service  in  the  judicial department in which the petition was filed. A
    29  copy of proof of mailing shall be thereafter filed with the court.
    30    4. For petitions  to  modify  an  existing  guardianship  pursuant  to
    31  section seventeen hundred fifty-five of this article and/or to appoint a
    32  standby  guardian  pursuant  to section seventeen hundred fifty-seven of
    33  this article, written notice must be  given  to  all  standby  guardians
    34  currently in succession for a person with a developmental disability who
    35  is the subject of the petition by regular mail unless such standby guar-
    36  dians  have  consented  to the petition. An affidavit of service by mail
    37  shall be filed with the court.  A copy of such petition to modify  shall
    38  also  be  served by certified mail upon the mental hygiene legal service
    39  in the judicial department in which the petition was filed.
    40    [3.] 5. No process or notice shall be necessary to  [a  parent,  adult
    41  child,  adult  sibling,  or  spouse  of the person who is intellectually
    42  disabled or person who is developmentally disabled who has been declared
    43  by a court as being incompetent. In addition, no process or notice shall
    44  be necessary to a spouse who is divorced from the person who  is  intel-
    45  lectually  disabled or person who is developmentally disabled, and to] a
    46  parent, adult child, or adult sibling when it shall appear to the satis-
    47  faction of the court, based on evidence submitted  to  the  court,  that
    48  such  person or persons have abandoned the person who [is intellectually
    49  disabled or person who is developmentally disabled] has a  developmental
    50  disability.  In addition, no process or notice shall be necessary to any
    51  individual  who  cannot, after due diligence, reasonably be located. The
    52  petitioner shall submit an affidavit to such effect.
    53    § 8. Section 1754 of the surrogate's court procedure act,  as  amended
    54  by chapter 198 of the laws of 2016, is amended to read as follows:
    55  § 1754. [Hearing and trial] Proceedings upon petition

        A. 8171--A                         13
 
     1    1.  Upon a petition for the appointment of a guardian of a person [who
     2  is intellectually disabled or person who  is  developmentally  disabled]
     3  with  a  developmental  disability  eighteen  years of age or older, the
     4  court shall [conduct a hearing at which such person shall have the right
     5  to jury trial. The right to a jury trial shall be deemed waived by fail-
     6  ure to make a demand therefor.  The court may in its discretion dispense
     7  with  a  hearing  for  the  appointment  of  a  guardian, and may in its
     8  discretion appoint a guardian ad litem,  or  the  mental  hygiene  legal
     9  service  if  such  person  is a resident of a mental hygiene facility as
    10  defined in subdivision (a) of section 47.01 of the mental  hygiene  law,
    11  to  recommend  whether  the appointment of a guardian as proposed in the
    12  application is in the best interest of the person who is  intellectually
    13  disabled  or  person  who is developmentally disabled, provided however,
    14  that such application has been made by:
    15    (a) both parents or the survivor; or
    16    (b) one parent and the consent of the other parent; or
    17    (c) any interested party and the consent of each parent.],  not  later
    18  than  forty-five  days following the filing of proof of mailing upon the
    19  mental hygiene legal service, schedule an appearance in the matter.
    20    (a) The mental hygiene  legal  service  shall  ascertain  whether  the
    21  person  with  a  developmental disability alleged to need a guardian has
    22  any objection to the relief sought  in  the  petition  and  whether  the
    23  service  is  unable  to  represent  the  interests  of the person in the
    24  proceeding due to conflict of interest.
    25    (b) If the service reports that the person with a developmental  disa-
    26  bility  alleged  to  need a guardian objects to the relief sought in the
    27  petition, the court shall appoint the service as counsel for the person.
    28  If the service is not available to serve as the person's counsel and the
    29  person does not otherwise have counsel of his or  her  own  choice,  the
    30  court shall appoint counsel for the person from among attorneys eligible
    31  for  such  appointment  pursuant to section thirty-five of the judiciary
    32  law.  The court shall ensure that the individual's counsel,  whether  it
    33  be  the  service or appointed counsel, have demonstrated experience with
    34  and knowledge of representing individuals with  developmental  disabili-
    35  ties.  The  appointment of such counsel shall be at no cost to the peti-
    36  tioner.
    37    (c) If the service reports that the person with a developmental  disa-
    38  bility  alleged  to  need a guardian does not object to relief sought in
    39  the petition, the person's interests shall continue to be represented by
    40  the service, if available. The service shall conduct an examination into
    41  the allegations of fact contained in the  petition  and  file  with  the
    42  court  and serve upon the petitioner or their counsel, no later than ten
    43  days prior to the appearance date, an answer confirming or  denying  the
    44  allegations  in  the petition and report as to whether the service finds
    45  grounds to object to the relief sought in the petition.  If  appropriate
    46  and  upon  consent  of  the  person with a developmental disability, the
    47  service may nominate a person or entity of the respondent's choosing  to
    48  serve  as  guardian.    The service will otherwise perform its functions
    49  consistent with uniform regulations promulgated by the  appellate  divi-
    50  sion of the supreme court.
    51    (d)  If  a  person  with  a developmental disability alleged to need a
    52  guardian does not object and does not otherwise appear by the service or
    53  other counsel, the court shall appoint  a  guardian  ad  litem  to  such
    54  person  pursuant  to this section and section four hundred three of this
    55  act. Any guardian ad litem appointed  pursuant  to  this  section  shall
    56  conduct  an  investigation into the allegations of fact contained in the

        A. 8171--A                         14
 
     1  petition and file with the court and serve no later than ten days  prior
     2  to  the  appearance date, a report of its findings confirming or discon-
     3  firming said allegations, and if appropriate and  upon  consent  of  the
     4  person  with  a  developmental disability nominate a person or entity of
     5  the respondent's choosing to serve as guardian, as  well  as  any  other
     6  matter  which  could assist the court's consideration of the matter, and
     7  serve a copy of the report upon  the  petitioner  upon  consent  of  the
     8  person with the developmental disability.
     9    (e) The service, any other counsel for the person with a developmental
    10  disability  alleged  to  need  a  guardian, or the guardian ad litem may
    11  apply to the court  for  permission  to  inspect  the  clinical  records
    12  pertaining to the person with a developmental disability alleged to need
    13  a  guardian  in accordance with state and federal laws. The service, any
    14  other counsel for the person with a  developmental  disability  and  the
    15  guardian  ad  litem,  if  any,  shall be afforded access to the person's
    16  clinical records without a court order to the extent that such access is
    17  otherwise authorized by state and federal laws.
    18    (f) The service, any other counsel for the person with a developmental
    19  disability alleged to need a guardian, and the  guardian  ad  litem,  if
    20  any,  may  request  the  court for further evaluation of the person by a
    21  physician, psychiatrist or certified psychologist.  In  the  event  that
    22  further  evaluations  are  required,  the  court  may  grant appropriate
    23  adjournments of the initial appearance date and may direct, in the  case
    24  of a person determined to be indigent, that any further court authorized
    25  evaluations be paid for out of funds available pursuant to section thir-
    26  ty-five  of  the judiciary law.   Such evaluation shall be at no cost to
    27  the petitioner.
    28    2. [When it shall appear to the  satisfaction  of  the  court  that  a
    29  parent  or  parents not joining in or consenting to the application have
    30  abandoned the person who is intellectually disabled  or  person  who  is
    31  developmentally  disabled  or  are  not  otherwise  required  to receive
    32  notice, the court may dispense with such parent's consent in determining
    33  the need to conduct a hearing for a person under the  age  of  eighteen.
    34  However,  if  the  consent  of  both  parents or the surviving parent is
    35  dispensed with by the court, a hearing shall be held on the application]
    36  At the first appearance, the respondent shall  be  present  unless  such
    37  presence  is  excused  by  the court upon recommendation of the service,
    38  respondent's counsel, or the guardian ad litem if  the  respondent  does
    39  not  have  counsel  and  upon consent of the respondent.  The petitioner
    40  shall also be present and may be represented by counsel. Any other party
    41  required to be served or noticed with process in the matter may be pres-
    42  ent.
    43    (a) Prior to such appearance, the petitioner, either personally or  by
    44  counsel, may confer with the service, respondent's counsel and the guar-
    45  dian ad litem if respondent does not have counsel and agree to amend any
    46  part  of  its petition and allegations of fact therein. Any such amended
    47  petition shall be filed with the court prior to the date  of  the  first
    48  appearance.
    49    (b) At the first appearance, the court shall examine the answer of the
    50  service,  respondent's counsel, and the report of the guardian ad litem,
    51  if any, and shall hear from the petitioner and the service, respondent's
    52  counsel and the guardian ad litem, if any, on the contents of  the  said
    53  answer or report and any amended petition filed.
    54    (c)  The  court may direct that an order and decree of guardianship be
    55  issued, including the authority of the guardian to act on behalf of  the
    56  respondent  with respect to any matter in which petitioner, the service,

        A. 8171--A                         15
 
     1  respondent's counsel, and the guardian ad litem, if any,  all  agree  on
     2  the  record  that  the respondent requires the requested relief and does
     3  not object to such relief.
     4    (d) In the event that the petition cannot be disposed of by the agree-
     5  ment  of  the  court  and  all of the parties, the court shall forthwith
     6  schedule a hearing on the matter at which the respondent shall be  pres-
     7  ent unless the court determines, based on clear and convincing evidence,
     8  that  the respondent's presence is medically contraindicated, in that it
     9  would be likely to cause harm to the respondent, or that the  respondent
    10  is  completely unable to participate in the hearing or where no meaning-
    11  ful participation will result from  the  respondent's  presence  at  the
    12  hearing.  Provided, however, that the respondent's presence shall not be
    13  waived over the objection of the service,  respondent's  counsel,  or  a
    14  guardian  ad  litem, if any. If the respondent physically cannot come or
    15  be brought to the courthouse, or the court determines,  based  on  clear
    16  and  convincing evidence that the respondent's presence would be harmful
    17  to the respondent, the hearing must be conducted  where  the  respondent
    18  resides.
    19    3.  [If a hearing is conducted, the person who is intellectually disa-
    20  bled or person who is developmentally disabled shall be  present  unless
    21  it shall appear to the satisfaction of the court on the certification of
    22  the  certifying physician that the person who is intellectually disabled
    23  or person who is developmentally  disabled  is  medically  incapable  of
    24  being present to the extent that attendance is likely to result in phys-
    25  ical harm to such person who is intellectually disabled or person who is
    26  developmentally  disabled,  or  under such other circumstances which the
    27  court finds would not be in the best  interest  of  the  person  who  is
    28  intellectually  disabled  or  person who is developmentally disabled] If
    29  there are any objections to the relief sought  by  the  petitioner,  the
    30  respondent  has  a  right to a hearing or jury trial, if demanded by the
    31  respondent. In addition, the court may conduct a hearing at the  request
    32  of  any  party  or  on its own motion. At any such hearing or trial, the
    33  petitioner must establish by clear and  convincing  evidence  any  facts
    34  alleged  in  the petition or amended petition which are controverted and
    35  are relevant to whether respondent has a developmental  disability,  and
    36  if  so,  whether appointment of a guardian is required as provided under
    37  subdivision one of section seventeen hundred fifty of this  article  and
    38  the scope of the guardian's powers.
    39    4. [If either a hearing is dispensed with pursuant to subdivisions one
    40  and  two of this section or the person who is intellectually disabled or
    41  person who is developmentally disabled is not  present  at  the  hearing
    42  pursuant  to  subdivision three of this section, the court may appoint a
    43  guardian ad litem if no mental hygiene legal service attorney is author-
    44  ized to act on behalf of the person who is  intellectually  disabled  or
    45  person  who is developmentally disabled. The guardian ad litem or mental
    46  hygiene legal service attorney, if appointed, shall personally interview
    47  the person who is intellectually disabled  or  person  who  is  develop-
    48  mentally disabled and shall submit a written report to the court.
    49    5.  If,  upon  conclusion  of such hearing or jury trial or if none be
    50  held upon the application, the court is satisfied that the  best  inter-
    51  ests  of  the  person  who  is  intellectually disabled or person who is
    52  developmentally disabled will be promoted by the appointment of a guard-
    53  ian of the person or property, or both, it shall make  a  decree  naming
    54  such  person or persons to serve as such guardians.] If, upon conclusion
    55  of such hearing or jury trial, if any, the court is satisfied, based  on
    56  the  standard outlined in this section and in subdivision one of section

        A. 8171--A                         16
 
     1  seventeen hundred fifty of this article that the respondent has a devel-
     2  opmental disability and requires the appointment of a  guardian  of  the
     3  person  or  property, or both, it shall make a decree naming such person
     4  or  persons  to  serve  as  such  guardians.   The court decree shall be
     5  designed to accomplish the least restrictive  form  of  intervention  by
     6  appointing  a  guardian with powers limited to those which the court has
     7  found necessary to assist the respondent in providing for personal needs
     8  and/or property management.    The  powers  of  the  guardian  shall  be
     9  tailored to the needs of the respondent.
    10    5.  If  the respondent is found to have agreed to the appointment of a
    11  guardian and the court determines that the appointment of a guardian  is
    12  necessary,  the  court  decree shall be designed to accomplish the least
    13  restrictive form of intervention by appointing a  guardian  with  powers
    14  limited  to  those  which  the  court  has found necessary to assist the
    15  respondent in providing for personal needs and/or  property  management.
    16  The  powers  of  the  guardian  shall  be  tailored  to the needs of the
    17  respondent.
    18    6. If the respondent is found to be  a  person  with  a  developmental
    19  disability  and  the court determines that the appointment of a guardian
    20  is necessary, the court decree shall be designed to accomplish the least
    21  restrictive form of intervention by appointing a  guardian  with  powers
    22  limited  to  those  which  the  court  has found necessary to assist the
    23  respondent in providing for personal needs and/or  property  management.
    24  The  powers  of  the  guardian  shall  be  tailored  to the needs of the
    25  respondent.
    26    7. Where the court directs the appointment of a guardian  pursuant  to
    27  this section, the court shall make the following findings of fact on the
    28  record:
    29    (a)  the respondent's functional limitations which impair the respond-
    30  ent's ability to provide for personal and/or property management needs;
    31    (b) the respondent's lack of understanding  and  appreciation  of  the
    32  nature and consequences of his or her functional limitations;
    33    (c) the likelihood that the respondent will suffer harm because of the
    34  respondent's  functional  limitations and inability to adequately under-
    35  stand and appreciate the nature  and  consequences  of  such  functional
    36  limitations;
    37    (d)  the  necessity  of  the appointment of a guardian to prevent such
    38  harm;
    39    (e) the specific powers of the guardian  which  constitute  the  least
    40  restrictive  form  of  intervention consistent with the findings of this
    41  subdivision; and
    42    (f) the duration of the appointment.
    43    8. If the hearing is conducted without the respondent  and  the  court
    44  appoints a guardian, the order of appointment shall set forth the factu-
    45  al basis for conducting the hearing without the presence of the respond-
    46  ent.
    47    9.  If  the hearing is conducted in the presence of the respondent and
    48  the respondent is not represented by counsel, the court shall explain to
    49  the respondent, on the record, the purpose and possible consequences  of
    50  the  proceeding,  the right to be represented by counsel of the respond-
    51  ent's own choice and the respondent's right to have counsel appointed if
    52  the respondent wishes to be represented by  counsel  and  is  unable  to
    53  afford one, and shall inquire of the respondent whether he or she wishes
    54  to  have an attorney appointed. If the respondent refuses the assistance
    55  of counsel, the court may nevertheless appoint counsel  for  the  person
    56  from  among  the  attorneys  eligible  for  such appointment pursuant to

        A. 8171--A                         17
 
     1  section thirty-five of the judiciary law, if the court is not  satisfied
     2  that  the respondent is capable of making an informed decision regarding
     3  the appointment of counsel.  The appointment of such counsel shall be at
     4  no  cost to the petitioner. The court shall ensure that the individual's
     5  counsel, whether it be the service  or  appointed  counsel,  has  demon-
     6  strated  experience  with and knowledge of representing individuals with
     7  developmental disabilities.
     8    10. The court shall direct that a decree be  entered  determining  the
     9  rights of the parties.
    10    11.  The order and judgment must be entered and served within ten days
    11  of the signing of the order.
    12    12. A copy of the order and decree shall be personally served upon and
    13  explained to the respondent in a manner which the respondent can reason-
    14  ably be expected to understand by the counsel for the person, or by  the
    15  guardian or the guardian ad litem.
    16    §  9.  The  surrogate's court procedure act is amended by adding a new
    17  section 1754-a to read as follows:
    18  § 1754-a. Decision making standard
    19    Decisions made by a guardian on behalf of a  person  with  a  develop-
    20  mental  disability shall be made in accordance with the following stand-
    21  ards.
    22    1. A guardian shall exercise authority only  as  necessitated  by  the
    23  person with a developmental disability's limitations, and, to the extent
    24  possible,  shall encourage the person with a developmental disability to
    25  participate in decisions and to act on his or her own behalf.
    26    2. A guardian shall consider the expressed desires and personal values
    27  of the person with a developmental disability to the  extent  known  and
    28  shall  afford  the  person  with a developmental disability the greatest
    29  amount of independence and self-determination, when making decisions and
    30  shall consult with the person with a developmental  disability  whenever
    31  meaningful communication is possible.
    32    3. If the person's wishes are unknown and remain unknown after reason-
    33  able efforts to discern them, the decision shall be made on the basis of
    34  the  best  interests  of  the  person with a developmental disability as
    35  determined by the guardian. In determining the  best  interests  of  the
    36  person  with  a  developmental disability, the guardian shall afford the
    37  person with a developmental disability the greatest amount of  independ-
    38  ence  and  self-determination, and shall weigh the reason for and nature
    39  of the proposed action; the benefit or  necessity  of  the  action,  the
    40  possible  risks  and  other consequences of the proposed action; and any
    41  available alternatives and their risks, consequences and benefits.   The
    42  guardian  shall  take  into account any other information, including the
    43  views of family and friends, that the guardian believes the person  with
    44  a  developmental  disability  would  have  considered if able to act for
    45  himself or herself.
    46    § 10. Section 1755 of the surrogate's court procedure act, as  amended
    47  by chapter 198 of the laws of 2016, is amended to read as follows:
    48  § 1755. Modification order
    49    1.  Any person [who is intellectually disabled or person who is devel-
    50  opmentally disabled] with a developmental disability eighteen  years  of
    51  age  or older, or any person on behalf of any person [who is intellectu-
    52  ally disabled or person who is developmental disabled] with  a  develop-
    53  mental  disability  for whom a guardian has been appointed, may apply to
    54  the court [having jurisdiction over the guardianship order] pursuant  to
    55  section  seventeen  hundred  fifty-one-a  of  this  article,  requesting
    56  modification of such order in order to protect the [person who is intel-

        A. 8171--A                         18

     1  lectually disabled's,  or  person  who  is  developmentally  disabled's]
     2  person  with a developmental disability's financial situation and/or his
     3  or her personal interests.
     4    2.  The  court [may] shall, upon receipt of any such request to modify
     5  the guardianship  order,  appoint  the  mental  hygiene  legal  service,
     6  assigned  counsel, or a guardian ad litem, as provided in paragraphs (a)
     7  through (f) of subdivision one of section seventeen  hundred  fifty-four
     8  of this article.  The court shall so modify the guardianship order if in
     9  its  judgment  the  guardianship is no longer needed or the interests of
    10  the guardian are adverse to those of the person [who  is  intellectually
    11  disabled or person who is developmentally disabled] with a developmental
    12  disability or if the interests of justice will be best served including,
    13  but  not  limited  to,  facts  showing  the necessity for protecting the
    14  personal and/or financial interests of the person [who is intellectually
    15  disabled or person who is developmentally disabled] with a developmental
    16  disability.
    17    3. To the extent that relief sought under this section would terminate
    18  the guardianship or restore certain powers to the person with a develop-
    19  mental disability, the burden of proof shall be on the person  objecting
    20  to  such  relief.  To  the  extent that relief sought under this section
    21  would further limit the powers of the person with a developmental  disa-
    22  bility, the burden shall be on the person seeking such relief.
    23    §  11. Section 1756 of the surrogate's court procedure act, as amended
    24  by chapter 198 of the laws of 2016, is amended to read as follows:
    25  § 1756. Limited [guardian of the property] purpose and/or limited  dura-
    26            tion guardianship
    27    1.  When  it  shall  appear to the satisfaction of the court that such
    28  person [who is intellectually disabled or person who is  developmentally
    29  disabled]  with  a  developmental disability for whom an application for
    30  guardianship is made is eighteen years of age or older and is wholly  or
    31  substantially  self-supporting  by means of his or her wages or earnings
    32  from employment, the court is authorized  and  empowered  to  appoint  a
    33  limited  guardian  of the property of such person [who is intellectually
    34  disabled or person who is developmentally disabled] with a developmental
    35  disability who shall receive, manage, disburse and account for only such
    36  property of said person [who is intellectually disabled or person who is
    37  developmentally disabled] with a developmental disability  as  shall  be
    38  received from other than the wages or earnings of said person.
    39    The  person  [who is intellectually disabled or person who is develop-
    40  mentally disabled] with a developmental disability for  whom  a  limited
    41  guardian  of  the  property  has  been appointed shall have the right to
    42  receive and expend any and all wages or other earnings  of  his  or  her
    43  employment  and shall have the power to contract or legally bind himself
    44  or herself for such sum of money not  exceeding  one  month's  wages  or
    45  earnings  from  such  employment  or three hundred dollars, whichever is
    46  greater, or as otherwise authorized by the court.
    47    2. When it shall appear to the satisfaction of the court, either  upon
    48  a  petition  for  guardianship  filed as permitted by sections seventeen
    49  hundred fifty-one and seventeen hundred fifty-two  of  this  article  or
    50  upon a petition filed pursuant to this section in a simplified format to
    51  be  established  by  the  office of court administration in consultation
    52  with the office for people with  developmental  disabilities  and  other
    53  interested  stakeholders,  that a person with a developmental disability
    54  needs the assistance of a guardian of the person and/or property for the
    55  purpose of making a single decision or for  a  brief  stated  period  of
    56  transition  in  such person's life, the court may appoint a limited-pur-

        A. 8171--A                         19

     1  pose guardian of the person and/or property to effectuate such  a  deci-
     2  sion  or  transition. In any such case, the provisions of section seven-
     3  teen hundred fifty-four of this article shall  apply,  except  that  the
     4  period for the rendering of a report by the mental hygiene legal service
     5  or  other  respondent's  counsel  may  be shortened as may be reasonably
     6  necessary to meet the needs of the respondent  under  the  circumstances
     7  presented.  An  order  appointing  and empowering such a limited-purpose
     8  guardian of the person and/or  property  shall  state  specifically  the
     9  duration  and  scope of such guardian's authority.  The nature and dura-
    10  tion of the guardianship must bear a reasonable relation to the  purpose
    11  for which the person is appointed a guardian.
    12    §  12. Section 1757 of the surrogate's court procedure act, as amended
    13  by chapter 198 of the laws of 2016, is amended to read as follows:
    14  § 1757. Standby guardian of a person [who is intellectually disabled  or
    15            person  who  is developmentally disabled] with a developmental
    16            disability
    17    1. Upon application, a standby guardian of the person or  property  or
    18  both of a person [who is intellectually disabled or person who is devel-
    19  opmentally disabled] with a developmental disability may be appointed by
    20  the  court. Any such application shall be made upon notice to the mental
    21  hygiene legal service. The court may also, upon application, appoint  an
    22  alternate  and/or successive alternates to such standby guardian, to act
    23  if such standby guardian shall die, or become  incapacitated,  or  shall
    24  renounce.  Such  appointments  by  the court shall be made in accordance
    25  with the provisions of this article.
    26    2. Such standby guardian, or alternate in the event  of  such  standby
    27  guardian's  death,  incapacity  or  renunciation,  shall without further
    28  proceedings be empowered to assume the duties of his or her office imme-
    29  diately upon death, renunciation or adjudication of incompetency of  the
    30  guardian or standby guardian appointed pursuant to this article, subject
    31  only  to  the  filing  of  an application for confirmation of his or her
    32  appointment by the  court  within  one  hundred  eighty  days  following
    33  assumption  of  his  or her duties of such office. Before confirming the
    34  appointment of the standby guardian or alternate guardian, the court may
    35  conduct a hearing pursuant to section seventeen  hundred  fifty-four  of
    36  this  article  upon  petition  by anyone on behalf of the person [who is
    37  intellectually disabled or person who is developmentally disabled]  with
    38  a developmental disability or the person [who is intellectually disabled
    39  or person who is developmentally disabled] with a developmental disabil-
    40  ity  if  such  person  is  eighteen  years  of age or older, or upon its
    41  discretion.
    42    3. Failure of a standby or alternate standby guardian  to  assume  the
    43  duties of guardian, seek court confirmation or to renounce the guardian-
    44  ship  within  sixty days of written notice by certified mail or personal
    45  delivery given by or on behalf of  the  person  [who  is  intellectually
    46  disabled or person who is developmentally disabled] with a developmental
    47  disability  of  a prior guardian's inability to serve and the standby or
    48  alternate standby guardian's duty to serve, seek court  confirmation  or
    49  renounce such role shall allow the court to:
    50    (a) deem the failure an implied renunciation of guardianship, and
    51    (b)  authorize, notwithstanding the time period provided for in subdi-
    52  vision two of this section to seek  court  confirmation,  any  remaining
    53  standby or alternate standby guardian to serve in such capacity provided
    54  (i)  an application for confirmation and appropriate notices pursuant to
    55  subdivision one of section seventeen hundred fifty-three of this article
    56  are filed, or (ii) an application for modification of  the  guardianship

        A. 8171--A                         20
 
     1  order  pursuant  to section seventeen hundred fifty-five of this article
     2  is filed.
     3    § 13. Subdivision 2 of section 1758 of the surrogate's court procedure
     4  act,  as  amended by chapter 198 of the laws of 2016, is amended to read
     5  as follows:
     6    2. After the appointment of a guardian, standby guardian or  alternate
     7  guardians, the court shall have and retain general jurisdiction over the
     8  person  [who is intellectually disabled or person who is developmentally
     9  disabled] with a developmental disability for whom such  guardian  shall
    10  have been appointed, to take of its own motion or to entertain and adju-
    11  dicate such steps and proceedings relating to such guardian, standby, or
    12  alternate  guardianship  as  may  be  deemed necessary or proper for the
    13  welfare of such person [who is intellectually disabled or person who  is
    14  developmentally disabled] with a developmental disability.
    15    §  14. Section 1759 of the surrogate's court procedure act, as amended
    16  by chapter 198 of the laws of 2016, is amended to read as follows:
    17  § 1759. Duration of guardianship
    18    1. Such guardianship shall not terminate at the  age  of  majority  or
    19  marriage of such person [who is intellectually disabled or person who is
    20  developmentally  disabled]  with  a  developmental  disability but shall
    21  continue during the life of such person, during the period specified  in
    22  a  limited purpose or limited duration guardianship, or until terminated
    23  by the court.
    24    2. A person eighteen years or older for whom such a guardian has  been
    25  previously  appointed  or anyone, including the guardian, on behalf of a
    26  person [who is intellectually disabled or person who is  developmentally
    27  disabled]  with  a developmental disability for whom a guardian has been
    28  appointed may petition the court which  made  such  appointment  or  the
    29  court  in his or her county of residence to have the guardian discharged
    30  and a successor appointed, or to  have  the  guardian  of  the  property
    31  designated as a limited guardian of the property, or to have the guardi-
    32  anship order modified, dissolved or otherwise amended. Upon such a peti-
    33  tion  for  review, the court shall conduct a hearing pursuant to section
    34  seventeen hundred fifty-four of this article, and shall apply all appli-
    35  cable standards outlined in this article, including  those  outlined  in
    36  sections  seventeen  hundred fifty, seventeen hundred fifty-five, seven-
    37  teen  hundred  fifty-six  and  seventeen  hundred  fifty-seven  of  this
    38  article.
    39    3.  Upon  marriage  of  such person [who is intellectually disabled or
    40  person who is developmentally disabled] with a developmental  disability
    41  for  whom  such  a  guardian  has  been appointed, the court shall, upon
    42  request of the person [who is intellectually disabled or person  who  is
    43  developmentally  disabled]  with  a developmental disability, spouse, or
    44  any other person acting on behalf of the person [who  is  intellectually
    45  disabled or person who is developmentally disabled] with a developmental
    46  disability,  review  the  need, if any, to modify, dissolve or otherwise
    47  amend the guardianship order including, but not limited to, the appoint-
    48  ment of the spouse as standby guardian. The court,  in  its  discretion,
    49  may  conduct such review pursuant to [section] the standards laid out in
    50  sections seventeen hundred fifty,seventeen hundred fifty-four, seventeen
    51  hundred fifty-five, seventeen hundred fifty-six  and  seventeen  hundred
    52  fifty seven of this article.
    53    §  15. Section 1760 of the surrogate's court procedure act, as amended
    54  by chapter 198 of the laws of 2016, is amended to read as follows:
    55  § 1760. Corporate guardianship

        A. 8171--A                         21
 
     1    No corporation may be appointed  guardian  of  the  person  under  the
     2  provisions  of this article, except that a non-profit corporation organ-
     3  ized and existing under the laws of the state of New York and having the
     4  corporate power to act as guardian of a person  [who  is  intellectually
     5  disabled or person who is developmentally disabled] with a developmental
     6  disability  may  be appointed as the guardian of the person only of such
     7  person [who is intellectually disabled or person who is  developmentally
     8  disabled] with a developmental disability.
     9    §  16. Section 1761 of the surrogate's court procedure act, as amended
    10  by chapter 198 of the laws of 2016, is amended to read as follows:
    11  § 1761. Application of other provisions
    12    To the extent that the context thereof shall admit, the provisions  of
    13  article  seventeen of this act shall apply to all proceedings under this
    14  article with the same force and effect as if  an  "infant",  as  therein
    15  referred  to, were a "person [who is intellectually disabled" or "person
    16  who is developmentally disabled"] with a  developmental  disability"  as
    17  herein defined, and a "guardian" as therein referred to were a "guardian
    18  of the person [who is intellectually disabled or a "guardian of a person
    19  who  is  developmentally  disabled"] with a developmental disability" as
    20  herein provided for.
    21    § 17. The surrogate's court procedure act is amended by adding  a  new
    22  section 1762 to read as follows:
    23  § 1762. Annual report of personal needs guardian
    24    1.  For  the purposes of this article, the guardian of a person with a
    25  developmental disability shall submit a simplified report regarding  the
    26  status  of  the  person  with a developmental disability annually on the
    27  anniversary of his or her appointment  or  at  such  other  interval  as
    28  ordered by the court.
    29    2.  The  simplified report shall be on a form prescribed by the office
    30  of court administration and shall be reviewed by the court.
    31    3. A  corporate  guardian  appointed  pursuant  to  section  seventeen
    32  hundred  sixty of this article may submit in lieu of the form prescribed
    33  by the office of court administration in subdivision two of this section
    34  its own internal report provided the information required by the  office
    35  of court administration to be contained in the report is included in the
    36  corporate annual report.
    37    4.  The  guardianship  report  form  shall be filed with the court and
    38  mailed to standby guardians and alternate standby guardians, and,  where
    39  applicable,  the director of mental hygiene legal service in the depart-
    40  ment in which the person with a developmental disability resides and the
    41  director of the residence of the person with a developmental  disability
    42  or  the  person  with  whom  the  person with a developmental disability
    43  resides.
    44    § 18.  Paragraph a of subdivision 1 of section  35  of  the  judiciary
    45  law,  as  amended by chapter 817 of the laws of 1986, is amended to read
    46  as follows:
    47    a. When a court orders a hearing in a proceeding upon a writ of habeas
    48  corpus to inquire into the cause of detention of a person in custody  in
    49  a  state  institution, or when it orders a hearing in a civil proceeding
    50  to commit or transfer a person to or retain him in a  state  institution
    51  when  such person is alleged to be mentally ill, mentally defective or a
    52  narcotic addict, or when it orders a hearing for the commitment  of  the
    53  guardianship and custody of a child to an authorized agency by reason of
    54  the mental illness or [mental retardation] developmental disability of a
    55  parent,  or  when  it  orders  a  hearing for guardianship under article
    56  seventeen-A of the surrogate's court procedure act, or when it orders  a

        A. 8171--A                         22
 
     1  hearing to determine whether consent to the adoption of a child shall be
     2  required  of  a  parent  who  is alleged to be mentally ill or [mentally
     3  retarded] have a developmental disability, or when it orders  a  hearing
     4  to  determine the best interests of a child when the parent of the child
     5  revokes a consent to the adoption of such child and such  revocation  is
     6  opposed  or  in any adoption or custody proceeding if it determines that
     7  assignment of counsel in such cases is mandated by the  constitution  of
     8  this  state  or  of  the  United States, the court may assign counsel to
     9  represent such person if it is satisfied that he is  financially  unable
    10  to  obtain  counsel.  Upon  an appeal taken from an order entered in any
    11  such proceeding, the appellate court may  assign  counsel  to  represent
    12  such  person  upon  the appeal if it is satisfied that he is financially
    13  unable to obtain counsel.
    14    § 19. Subdivision 4 of section 35 of the judiciary law, as amended  by
    15  chapter  706 of the laws of 1975 and as renumbered by chapter 315 of the
    16  laws of 1985, is amended to read as follows:
    17    4. In any proceeding described in paragraph (a) of subdivision one  of
    18  this  section,  when  a person is alleged to be a person with a develop-
    19  mental disability in need of a guardian pursuant to article  seventeen-A
    20  of the surrogate's court procedure act, be mentally ill, mentally defec-
    21  tive  or  a  narcotic  addict,  the  court which ordered the hearing may
    22  appoint no more  than  two  psychiatrists,  certified  psychologists  or
    23  physicians  to  examine and testify at the hearing upon the condition of
    24  such person. A psychiatrist,  psychologist  or  physician  so  appointed
    25  shall,  upon  completion  of  his  services,  receive  reimbursement for
    26  expenses  reasonably  incurred  and  reasonable  compensation  for  such
    27  services,  to  be fixed by the court. Such compensation shall not exceed
    28  two hundred dollars if one psychiatrist, psychologist  or  physician  is
    29  appointed,  or an aggregate sum of three hundred dollars if two psychia-
    30  trists, psychologists  or  physicians  are  appointed,  except  that  in
    31  extraordinary  circumstances  the  court may provide for compensation in
    32  excess of the foregoing limits.
    33    § 20.  This act shall take effect on the  one  hundred  eightieth  day
    34  after it shall have become a law.
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