K00904 Summary:

BILL NOK00904
 
SAME ASNo Same As
 
SPONSORRules (Jones)
 
COSPNSR
 
MLTSPNSRBarclay, Buttenschon, Cahill, Crouch, D'Urso, Englebright, Galef, Giglio, Johns, Lupardo, Manktelow, McDonald, McDonough, Miller B, Norris, Palumbo, Simon, Smullen, Stern, Tague, Thiele, Walsh, Woerner, Zebrowski
 
 
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K00904 Actions:

BILL NOK00904
 
06/08/2020referred to calendar
06/10/2020adopted
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K00904 Committee Votes:

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K00904 Floor Votes:

There are no votes for this bill in this legislative session.
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K00904 Text:

 
Assembly Resolution No. 904
 
BY: M. of A. Rules (Jones)
 
        LEGISLATIVE      RESOLUTION  memorializing  Governor
        Andrew M. Cuomo to  proclaim  May  2020,  as  Cystic
        Fibrosis Awareness Month in the State of New York
 
  WHEREAS,  It  is  the  custom  of this Legislative Body to recognize
official months that are set aside  to  increase  awareness  of  serious
illnesses that affect the lives of citizens of New York State; and
 
  WHEREAS,  Attendant  to  such  concern,  and in full accord with its
long- standing traditions, this Legislative  Body  is  justly  proud  to
memorialize  Governor  Andrew  M.  Cuomo to proclaim May 2020, as Cystic
Fibrosis Awareness Month in the State of New York; and
 
  WHEREAS, The Cystic Fibrosis Foundation, a donor-supported nonprofit
organization, is the world's leader in the search for a cure for  cystic
fibrosis,  having raised and invested hundreds of millions of dollars to
help develop drugs and therapies; and
 
  WHEREAS, The Cystic Fibrosis Foundation is working  to  cure  cystic
fibrosis  and  to  provide  all  people  struggling with the disease the
opportunity to lead full, productive lives; and
 
  WHEREAS, Cystic fibrosis, commonly referred to as "CF", is a genetic
disease affecting approximately 30,000 children and adults in the United
States and nearly 70,000 children and adults worldwide,  1,625  of  whom
live in New York; and
 
  WHEREAS,  A  defective gene causes the body to produce an abnormally
thick, sticky mucus that clogs the lungs, and these  secretions  produce
life-threatening  lung  infections and obstruct the pancreas, preventing
digestive enzymes from reaching the intestines to help  break  down  and
absorb food; and
 
  WHEREAS,  More than 10 million Americans are symptomless carriers of
the defective CF gene, and CF occurs in approximately one of every 3,500
live births in the United States; and
 
  WHEREAS, The median age of survival for a person  with  CF  is  41.1
years; and
 
  WHEREAS,  With advances in the treatment of CF, the number of adults
with CF has steadily grown, and approximately 1,000 new cases of CF  are
diagnosed each year; and
 
  WHEREAS, Through the CF Foundation's efforts, the life expectancy of
a child with CF has doubled in the last 30 years, and research to find a
cure is more promising than ever; and
 
  WHEREAS,  Nearly  50%  of  the  CF population is 18 years of age and
older, and people with CF have a variety of symptoms attributed  to  the
more than 1,800 mutations of the CF gene; and
 
  WHEREAS,  Infant  blood  screening  to detect genetic defects is the
most reliable and least costly method to identify persons likely to have
CF; and
 
  WHEREAS,  Early diagnosis of CF permits early treatment and enhances
quality of life and longevity and the treatment of  CF  depends  on  the
stage of the disease and the organs involved; and
 
  WHEREAS,  Clearing  mucus from the lungs is an important part of the
daily CF treatment  regimen,  and  other  types  of  treatments  include
inhaled antibiotics and pancreatic enzymes, among others; and
 
  WHEREAS,   There  are  13  world-class  treatment  centers  in  this
Commonwealth which specialize in the diagnosis of CF  and  the  care  of
persons with CF; and
 
  WHEREAS,  It is imperative that there be greater public awareness of
this serious health issue, and more must be done to increase activity at
the local, State and national levels; now, therefore, be it
 
  RESOLVED, That this Legislative Body pause in its  deliberations  to
memorialize  Governor  Andrew  M.  Cuomo to proclaim May 2020, as Cystic
Fibrosis Awareness Month in the State of New York; and be it further
 
  RESOLVED, That a copy of this  Resolution,  suitably  engrossed,  be
transmitted  to  The Honorable Andrew M. Cuomo, Governor of the State of
New York.
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