STATE OF NEW YORK
________________________________________________________________________
183
2025-2026 Regular Sessions
IN ASSEMBLY(Prefiled)
January 8, 2025
___________
Introduced by M. of A. ROSENTHAL, BENEDETTO, CRUZ, ROZIC, FORREST, RAGA,
TAYLOR, WEPRIN, SEAWRIGHT, PAULIN, STECK, SHIMSKY, DAVILA, McMAHON,
McDONOUGH, RA, MIKULIN -- Multi-Sponsored by -- M. of A. SIMON, STIRPE
-- read once and referred to the Committee on Higher Education
AN ACT to amend the education law, in relation to licensing of genetic
counselors
The People of the State of New York, represented in Senate and Assem-bly, do enact as follows:
1 Section 1. Legislative intent and findings. The legislature finds that
2 while significant steps have been taken through legislation in response
3 to the COVID-19 crisis in New York State, much more must be done to
4 combat the continued threat to public health and safety presented by
5 COVID-19 and future pandemics including identifying risk factors, devel-
6 oping responses, and increasing access to treatment.
7 The legislature intends to build on the initial efforts of the execu-
8 tive and legislature in responding to the COVID-19 crisis by recognizing
9 the significant role genetic counselors play in identifying genetic
10 variants through predictive testing, investigating underlying genomic
11 susceptibilities and deciphering complex testing infrastructures, culmi-
12 nating in the critical counseling of patients and educating other health
13 care providers.
14 The legislature finds that the state's mission to ensure preparedness
15 against future health crises through data collection, research, and
16 access to safe care will be advanced through the licensure of genetic
17 counselors and the active engagement of these uniquely trained practi-
18 tioners and researchers in the making of informed personal health care
19 decisions and the development of effective health care policies.
20 § 2. The education law is amended by adding a new article 142 to read
21 as follows:
EXPLANATION--Matter in italics (underscored) is new; matter in brackets
[] is old law to be omitted.
LBD00942-01-5
A. 183 2
1 ARTICLE 142
2 GENETIC COUNSELING
3 Section 7050. Introduction.
4 7051. Practice of genetic counseling and use of the title
5 "genetic counselor".
6 7052. State board for genetic counseling.
7 7053. Requirements for a professional license.
8 7054. Exempt persons.
9 7055. Limited permits.
10 7056. Special provisions.
11 § 7050. Introduction. This article applies to the licensing of genetic
12 counselors. The general provisions for all professions contained in
13 article one hundred thirty of this title apply to this article.
14 § 7051. Practice of genetic counseling and use of the title "genetic
15 counselor". 1. The "practice of genetic counseling" shall mean the
16 communication to and education of human clients, their families, other
17 health care professionals and the general public with regard to genetic
18 testing, individual family histories, or other genetic, personal medical
19 history, and technical information associated with the occurrence, risk
20 of occurrence or recurrence, of a genetic or hereditary condition or
21 birth defect. A practitioner of genetic counseling shall seek to
22 promote decision-making for their client which respects the client's
23 culture, language, tradition, lifestyle, religion, beliefs and values.
24 Genetic counseling shall include, but not be limited to, the following:
25 (a) obtain and evaluate personal and family medical history to deter-
26 mine genetic risk for genetic conditions and diseases in a human client,
27 such client's offspring, and other family members;
28 (b) educate clients regarding the means to assess and manage risk for
29 genetic conditions and disease;
30 (c) identify and order genetic laboratory tests and coordinate other
31 diagnostic studies as appropriate for the genetic assessment;
32 (d) integrate genetic laboratory test results and other diagnostic
33 studies with personal and family medical history to assess and communi-
34 cate risk factors for genetic conditions;
35 (e) explain to a client the clinical implications of genetic laborato-
36 ry tests and other diagnostic studies and their results; and
37 (f) maintain written documentation of the genetic counseling services
38 performed for clients and health care professionals.
39 2. Nothing in this article shall be construed to authorize a licensed
40 genetic counselor to diagnose or treat any genetic disease or medical
41 condition, practice psychotherapy, or practice any other profession that
42 is licensed under this title. This includes, but may not be limited to,
43 the following:
44 (a) Prescribe or administer drugs as defined in this chapter or as a
45 treatment, therapy, or professional services in the practice of such
46 genetic counselor's profession;
47 (b) Use invasive procedures as a treatment, therapy, or professional
48 service in the practice of such genetic counselor's profession. For the
49 purposes of this subdivision, "invasive procedure" means any procedure
50 in which human tissue is cut, altered, or otherwise infiltrated by
51 mechanical or other means. Invasive procedures shall include surgery,
52 lasers, ionizing radiation, therapeutic ultrasound, or electroconvulsive
53 therapy; or
54 (c) Provide psychotherapy as defined in subdivision two of section
55 eighty-four hundred one of this title.
A. 183 3
1 3. If in the course of providing genetic counseling to any client, a
2 genetic counselor finds any indication of disease or condition that may
3 require medical assessment, the genetic counselor shall refer that
4 client to a licensed physician, or as appropriate, another health care
5 professional licensed pursuant to this title.
6 4. Only a person licensed or exempt under this article shall practice
7 genetic counseling. Only a person licensed under this article shall use
8 the title "licensed genetic counselor" and use the letters "L.G.C."
9 after such person's name or any words or letters, abbreviations or
10 insignia indicating or implying that a person is licensed pursuant to
11 this article.
12 5. The provisions of this article shall not prohibit any licensed
13 genetic counselor employed by any organization or entity who is provid-
14 ing occasional services from engaging in the practice of genetic coun-
15 seling, subject to the limitations prescribed by the department, in
16 consultation with the state board for genetic counseling and the
17 provision of such occasional services shall be deemed not to be the
18 practice of a profession for purposes of all applicable partnership,
19 corporation or limited liability company laws and regulations.
20 § 7052. State board for genetic counseling. 1. A state board for
21 genetic counseling shall be appointed by the board of regents upon the
22 recommendation of the commissioner, prior to the effective date of this
23 article, and shall assist on matters of professional licensing and
24 professional conduct in accordance with section sixty-five hundred eight
25 of this title. Members of the first board need not be licensed prior to
26 their appointment to such board. An executive secretary to the board
27 shall be appointed by the board of regents on recommendation of the
28 commissioner.
29 2. The board shall consist of seven individuals, to be composed of the
30 following:
31 (a) five licensed genetic counselors,
32 (b) one licensed physician, and
33 (c) a public representative as defined in paragraph b of subdivision
34 one of section sixty-five hundred eight of this title.
35 3. Board members shall be appointed for terms of five years. The terms
36 of the first appointed members shall be staggered so that two members
37 are appointed for three years, three members are appointed for four
38 years and two members are appointed for five years.
39 § 7053. Requirements for a professional license. To qualify for a
40 license as a "licensed genetic counselor", an applicant shall fulfill
41 the following requirements:
42 1. Application: file an application with the department;
43 2. Education: have received a master's degree or higher in genetic
44 counseling or human genetics from a program registered by the depart-
45 ment, or determined by the department to be the substantial equivalent,
46 in accordance with the commissioner's regulations. Appropriate course-
47 work shall be determined in accordance with the commissioner's regu-
48 lations on recommendations of the state board for genetic counseling;
49 3. Experience: experience acceptable to the department;
50 4. Examination: pass an examination satisfactory to the department and
51 in accordance with the commissioner's regulations;
52 5. Age: be at least twenty-one years of age;
53 6. Character: be of good moral character as determined by the depart-
54 ment;
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1 7. Fees: pay a fee of three hundred dollars to the department for an
2 initial license and two hundred dollars for each subsequent triennial
3 re-registration of a license.
4 § 7054. Exempt persons. 1. So long as the person does not hold them-
5 self out to the public as a genetic counselor, the provisions of this
6 article shall not apply to:
7 a. A licensed health care professional licensed under this title who
8 is practicing within the scope of practice as defined in this title;
9 b. A student or intern enrolled in a master's or higher program regis-
10 tered or approved by the department where the student or intern is
11 engaged in activities constituting the practice of a profession as
12 defined in this title, whose scope of practice includes genetic coun-
13 seling; provided, however, such activities shall be part of a supervised
14 training program under a licensed genetic counselor or an appropriate
15 health care professional licensed pursuant to this title in accordance
16 with the commissioner's regulations; and
17 c. An employee of the state department of health in the provision of
18 education regarding conditions included on the newborn screening panels.
19 2. Nothing in this article shall be construed as prohibiting coun-
20 seling services provided by an attorney within such attorney's usual
21 practice, rape crisis counselor within such rape crisis counselor's
22 usual counseling duties, or pastoral counseling by a clergy member work-
23 ing within such clergy member's ministerial charge of obligation.
24 § 7055. Limited permits. Limited permits may be issued by the depart-
25 ment to authorize the practice of the profession under a licensed genet-
26 ic counselor or physician pursuant to the commissioner's regulations:
27 1. The department may issue a limited permit to an applicant who meets
28 all qualifications for licensure as a genetic counselor, except those
29 relating to the examination and experience, in accordance with the
30 commissioner's regulations.
31 2. Limited permits shall be for one year. Such permits may be extended
32 at the discretion of the department, for one additional year.
33 3. The fee for each limited permit and for each renewal shall be
34 seventy dollars.
35 § 7056. Special provisions. 1. Any individual who meets the require-
36 ments for a license established in this article, except for examination,
37 experience and education, and who is certified by a national certifying
38 body having certification standards acceptable to the department, may be
39 licensed without meeting additional requirements as to examination,
40 experience, or education, provided that such individual submits an
41 application to the department within two years of the effective date of
42 this article.
43 2. Any individual who meets the requirements for a license established
44 in this article, except for examination, may be licensed without exam-
45 ination, provided that the person completed the education requirement
46 prior to two thousand eight, submits evidence of a minimum of ten years
47 employment as a genetic counselor, submits experience acceptable to the
48 department and submits an application to the department within two years
49 of the effective date of this article.
50 § 3. Severability. If any clause, sentence, paragraph, section or part
51 of this act shall be adjudged by any court of competent jurisdiction to
52 be invalid and after exhaustion of all further judicial review, the
53 judgment shall not affect, impair or invalidate the remainder thereof,
54 but shall be confined in its operation to the clause, sentence, para-
55 graph, section or part of this act directly involved in the controversy
56 in which the judgment shall have been rendered.
A. 183 5
1 § 4. This act shall take effect two years after it shall have become a
2 law. Effective immediately, the state education department is authorized
3 to promulgate any rule or regulation necessary for the implementation of
4 this act on its effective date, including, but not limited to, the
5 appointment of board members pursuant to section 7052 of the education
6 law, as added by section two of this act on or before such effective
7 date.