STATE OF NEW YORK
________________________________________________________________________
2627
2021-2022 Regular Sessions
IN ASSEMBLY
January 19, 2021
___________
Introduced by M. of A. HYNDMAN -- read once and referred to the Commit-
tee on Health
AN ACT to amend the public health law, in relation to prenatal trisomy
diagnosis awareness
The People of the State of New York, represented in Senate and Assem-bly, do enact as follows:
1 Section 1. The public health law is amended by adding a new section
2 2533 to read as follows:
3 § 2533. Prenatal trisomy diagnosis awareness. 1. For purposes of this
4 section, the following terms shall have the following meanings:
5 (a) "Health care practitioner" means a medical professional that
6 provides prenatal or postnatal care and administers or requests adminis-
7 tration of a diagnostic or screening test to a pregnant woman that
8 detects for trisomy conditions; and
9 (b) "Trisomy conditions" means trisomy 13, otherwise known as Patau
10 syndrome; trisomy 18, otherwise known as Edwards syndrome; and trisomy
11 21, otherwise known as Down syndrome.
12 2. A health care practitioner who orders prenatal tests for a pregnant
13 woman to screen for trisomy conditions shall provide the following
14 information to the pregnant woman if the test reveals a positive result
15 for any of the trisomy conditions:
16 (a) Up-to-date and evidence-based information about the trisomy condi-
17 tions that has been reviewed by medical experts and national trisomy
18 organizations. The information must be provided in a written or an
19 alternative format and must include the following:
20 i. expected physical, developmental, educational, and psychosocial
21 outcomes;
22 ii. life expectancy;
23 iii. the clinical course description;
24 iv. expected intellectual and functional development; and
EXPLANATION--Matter in italics (underscored) is new; matter in brackets
[] is old law to be omitted.
LBD06672-01-1
A. 2627 2
1 v. treatment options available for the particular syndrome for which
2 the test was positive.
3 (b) Contact information for nonprofit organizations that provide
4 information and support services for trisomy conditions.
5 3. (a) The commissioner shall provide written information to health
6 care practitioners necessary to implement subdivision two of this
7 section.
8 (b) Additionally, the commissioner shall post such information on the
9 department's website.
10 (c) The commissioner shall follow existing department practice to
11 ensure that the information is culturally and linguistically appropriate
12 for all recipients.
13 (d) Any local or national organization that provides education or
14 services related to trisomy conditions, may request that the commission-
15 er include the organization's informational material and contact infor-
16 mation on the department's website. Once a request is made, the commis-
17 sioner may add the information to the website.
18 § 2. This act shall take effect on the ninetieth day after it shall
19 have become a law. Effective immediately, the addition, amendment and/or
20 repeal of any rule or regulation necessary for the implementation of
21 this act on its effective date are authorized to be made and completed
22 on or before such effective date.