Assembly Resolution No. 900
BY: M. of A. Rules (Cusick)
MEMORIALIZING Governor Kathy Hochul to proclaim
September 4-10, 2022, as Duchenne Muscular Dystrophy
Awareness Week in the State of New York
WHEREAS, It is the custom of this Legislative Body to recognize
official weeks that are set aside to increase awareness of serious
illnesses that affect the lives of citizens of New York State; and
WHEREAS, Attendant to such concern, and in full accord with its
long-standing traditions, this Legislative Body is justly proud to
memorialize Governor Kathy Hochul to proclaim September 4-10, 2022, as
Duchenne Muscular Dystrophy Awareness Week in the State of New York, in
conjunction with the observance of National Duchenne Muscular Dystrophy
Awareness Week; and
WHEREAS, Duchenne muscular dystrophy is the most common fatal
genetic disorder diagnosed in childhood, affecting approximately one in
every 5,000 live male births (about 20,000 new cases each year
worldwide); since the Duchenne gene is found on the X-chromosome, it
primarily affects boys, however, it occurs across all races and
cultures; and
WHEREAS, Duchenne muscular dystrophy results in progressive loss of
strength and is caused by a mutation in the gene that encodes for
dystrophin; since dystrophin is absent, the muscle cells are easily
damaged; and
WHEREAS, The progressive muscle weakness leads to serious medical
problems, particularly issues relating to the heart and lungs; young men
with this debilitating disease typically live into their late twenties;
and
WHEREAS, Becker muscular dystrophy, which is less severe than
Duchenne muscular dystrophy, occurs when dystrophin is manufactured, but
not in the normal folin or amount; and
WHEREAS, Duchenne muscular dystrophy can be passed from parent to
child, but approximately 35% of cases occur because of a random
spontaneous mutation; in other words, it can affect anyone; and
WHEREAS, Although there are medical treatments that may help slow
its progression, there is currently no cure for Duchenne muscular
dystrophy; and
WHEREAS, Jar of Hope's mission is to find a cure through accelerated
research, call for action in Washington D.C., demand optimal care for
all young men, and educate the global community; and
WHEREAS, Scientists around the globe are conducting intense research
to understand what causes muscle dysfunction in Duchenne muscular
dystrophy and to apply that understanding to the development of
effective treatments; and
WHEREAS, National Duchenne Muscular Dystrophy Awareness Week will
highlight the importance of identifying and communicating early signs of
this genetic disorder which is the key to early diagnosis; now,
therefore, be it
RESOLVED, That this Legislative Body pause in its deliberations to
memorialize Governor Kathy Hochul to proclaim September 4-10, 2022, as
Duchenne Muscular Dystrophy Awareness Week in the State of New York; and
be it further
RESOLVED, That copies of this Resolution, suitably engrossed, be
transmitted to The Honorable Kathy Hochul, Governor of the State of New
York; and Jar of Hope.
