Today, Assemblyman Angelo Santabarbara took a step in addressing the challenges faced by individuals with Alzheimer's disease by introducing a crucial piece of legislation. This proposed bill focuses on enhancing support and awareness for those living with Alzheimer's disease.
Key Provisions of the Alzheimer's Disease Resource Notification Bill:
- Mandatory Informational Resources: Requires insurers to provide written informational resources to insured individuals diagnosed with Alzheimer's disease. These resources cover a range of physical, developmental, educational, and psychosocial outcomes for individuals living with Alzheimer's disease.
- Up-to-Date, Evidence-Based Content: The informational resources will be up-to-date, evidence-based, and culturally and linguistically appropriate for the individual. Medical experts or representatives of national medical or genetic organizations and disability experts or representatives of patient advocacy groups will develop these resources.
- Contact Information for Support Organizations: The resources shall include contact information for one or more organizations that specialize in supporting individuals with Alzheimer's disease, such as the Alzheimer's Association.
- Timely Notification: Individuals must receive these informational resources no later than sixty days after being notified of their Alzheimer's disease diagnosis. Notification can occur through claims data or directly by the insured or enrollee.
- Delivery Method Options: Resources will be delivered via United States postal mail, unless the insured or enrollee consents to an alternative method, including electronic notification.
Assemblyman Santabarbara emphasizes the importance of raising awareness and ensuring that individuals with Alzheimer's disease and their families have access to accurate, timely, and supportive information.
“Recognizing the urgency of accurate information, this legislation aims to support those affected by Alzheimer's disease,” said Assemblyman Angelo Santabarbara. “It ensures timely access to evidence-based resources, empowering individuals and families through specialized organizations.”